Module 5 HAIL Research This module provides an overview of how researchers will collect data with both Independent Living Specialist(ILS) and consumers.

Module 5 Learning Outcomes To understand the importance of the HAIL research process To understand how researchers will collect data with ILS To understand how researchers will collect data with consumers

Module 5- Contents The importance of the HAIL research process HAIL research overview HAIL research process with ILS HAIL research process with consumers

Why Is HAIL Research Process Important? To evaluate the HAIL process/procedure Find out what works and what does not work To evaluate the HAIL outcome Find out whether consumers have benefited from the HAIL program Increased knowledge and consumer skills to access health care? Increased knowledge and skills to manage secondary health conditions? To improve the HAIL program

HAIL Research Overview Start: HAIL Staff Meet with IL Specialist Choose Eligible Consumers Pre-Data HAIL Training HAIL Steps Post-Data Complete Paperwork Collected /conducted by IL specialist Collected /conducted by HAIL staff

HAIL Research Overview (cont.) ILS tasks: Recruit eligible consumers as participants; Implement HAIL steps with consumers; Record how HAIL steps are implemented with each consumer using an existing system or the HAIL tracking form; Communicate with the HAIL researchers about program implementation.

Let’s Talk! Do you have any questions so far about HAIL research process and what you should do?

Data Collection with ILS During HAIL Implementation: Record how the ILS worked with each consumer: How much time does the ILS spend working with the consumer? What’s the format of the communication (e.g., in-person meeting, phone conversation, text, email) between the ILS and the consumer? What are the main activities occurred during each contact? How often does the ILS communicate with the consumer? We can either ask the ILS to fill out a form or extract this information from their existing database if applicable.

Data Collection with ILS (cont.) During HAIL Implementation: Assessment of goal achievement with the Goal Attainment Scale (GAS) Purpose: to measure the extent to which goals have been achieved 5-point measurement scale 1 = much less than expected outcome 2 = somewhat less than expected outcome 3 = expected outcome 4 = higher than expected outcome 5 = much higher than expected outcome

Data Collection with ILS (cont.) Assessment of goal achievement (cont.) Goal setting (ILS and consumers) The ILS assist consumers to set short-term SMART goals 1 = much less than expected outcome Current level of each goal 2 = somewhat less than expected outcome 3 = expected outcome Identified short-term SMART goals 4 = higher than expected outcome 5 = much higher than expected outcome

Data Collection with ILS (cont.) Assessment of goal achievement (cont.) Goal measurement Researchers will define the other levels of goals using the GAS for consumers Researchers will confirm with the consumers and ILS Researchers will ask the consumers to rate their goal performance at the end of a goal pursuit period Researchers will ask the ILS to evaluate the goal performance of consumers for reliability

Data Collection with ILS (cont.) During HAIL Implementation: Record of consumers’ short-term goals What are the consumer’s short-term goal(s) for consumer skills? What are the consumer’s short-term goal(s) for addressing secondary health conditions? How is the consumer going to track his/her progress toward goals? What is the progress made upon each contact between the ILS and the consumer? What are the obstacles or challenges faced by the consumer?

Data Collection with ILS (cont.) After HAIL Implementation Researchers will interview (in-person or phone) the ILS about their experiences in using the HAIL program: What worked? What did not work? How to improve HAIL?

Data Collection with Consumers Before HAIL Implementation: Sign consent Form Complete documentation, including pre-tests: Demographic Survey Barriers to Health Promotion Activities Among Persons with Disabilities (BHAPD) Self-Efficacy for Managing Chronic Disease The Hope Scale

Data Collection with Consumers (cont.) During HAIL Implementation: Report the goal pursuit progress Goal Attainment Scale (GAS) After HAIL Implementation:

Data Collection with Consumers (cont.) After HAIL Implementation: Post-tests Barriers to Health Promotion Activities Among Persons with Disabilities (BHAPD) Self-Efficacy for Managing Chronic Disease The Hope Scale

Data Collection with Consumers (cont.) After HAIL Implementation: Researchers will interview (in-person or phone) consumers about their experiences with the HAIL program: What worked? What did not work? How to improve HAIL?

Let’s Talk! Do you have any questions about HAIL data collection process both with ILS and consumers? Any questions about HAIL research?