Patient Activism Charles Gore.

Slides:



Advertisements
Similar presentations
THE CARERS RESEARCH PARTNERSHIP Elizabeth McDade.
Advertisements

Involving all health care providers in collaborative TB/HIV activities Eva Nathanson PPM subgroup meeting Cairo, Egypt, 3-5 June 2008.
Webinar Series We will begin shortly. We will not be taking roll call. Tuesday, May 8, 2012 World Hepatitis Day Planning & Updates Michael Ninburg, Hepatitis.
ELEMENTS OF A SAWEN FUNDRAISING STRATEGY. 1.DETERMINE FUNDRAISING NEEDS 2.IDENTIFY FUNDRAISING SOURCES 3.DEVELOP FUNDRAISING TOOLS 4.DEVELOP PROJECT PROPOSALS.
51/52 IJAIYE ROAD, BESIDE UBA BANK, OGBA, IKEJA LAGOS NIGERIA. WEBSITE: PHONE NUMBER:
Global Hepatitis C Guidelines 2014: recommendations for a public health approach Gottfried Hirnschall.
“Writing our own narratives” The Global Advocacy Agenda for Young People Living with HIV.
HIV/AIDS STI & Viral Hepatitis WHO/Europe HIV/HCV coinfection in Europe Dr Irina Eramova August 4, 2008 XVII International AIDS Conference, Mexico.
Welcome Rebecca Wood Chief Executive. Welcome Alzheimer’s Research UK.
World Health Organization Department of Chronic Diseases and Health Promotion World Health Organization Global Perspective on Health Promotion Tang Kwok-cho.
Overview of Advocacy, Communication, and Social Mobilization.
Conclusions of the meeting and closing remarks. Chronology 1981Hepatitis B vaccine becomes available 1991World Health Assembly resolution call for the.
Alliance of Community Oriented Primary Care services [ACOPC] 18 March 2011 By Dr Ade Adeagbo.
IATT Advocacy Working Group April 15, Purpose and Members Objectives Influence decision-making by providing support to establish new or change existing.
21 November 2013 Brussels Cristina Padeanu -PATIENT EVIDENCE WORKSHOP - JOINT ACTION ON PATIENT SAFETY AND QUALITY OF HEALTH CARE (PASQ) PROJECT.
1 - InfoHep webinar, 25 April Prof Jeffrey V. Lazarus Editor-in-Chief, Hepatology, Medicine and Policy CHIP,
 The Work of Civil Society in the Field of HIV Prevention Brussels, 23 February 2011 The Work of European AIDS Treatment Group (EATG) 1.
Our five year plan to improve local health and care services.
WHO Global Health Sector Strategies HIV; Viral Hepatitis; Sexually Transmitted Infections Common structure Universal Health Coverage SDGs Cascade.
Sustainable WASH Systems The Global Environment Officers State of the Art Workshop 2016.
Case studies and Communication Strategies: Communication and Messaging Sylvia Meek (Malaria Consortium), June 2014.
Use MY data use MY data is a movement for patients; it aims to build confidence in the use of patient data for analysis and research. Timely access to.
State Office of AIDS Update
MODULE 3 Harm reduction advocacy
Key Population Community taking the Lead.
An example of a partnership is the Commonwealth Health Professions Alliance of which the CNF is a founding member. The CHPA is an alliance of Commonwealth.
3rd International HIV/Viral Hepatitis Co-Infection Meeting HIV/Viral Hepatitis: Improving Diagnosis, Antiviral Therapy and Access Sunday, 17 July.
Regional Strategy Ideas Inception Meeting February 2007
Fabienne Hariga Senior Adviser, HIV/AIDS Section
Improving Hospital Food: evaluating the impact of the Soil Association Food for Life programme Selena Gray, Robin Means, Judy Orme, Hannah Pitt, Matthew.
Sustainable Community Based Rehabilitation at local and national levels Presented by Professor Gwynnyth Llewellyn (University of Sydney) and Darryl Barrett.
WHO’s prioritised research agenda for the prevention and control of NCDs prioritises
The Development of a Vocational Training (VT) Foundation Programme for Community Pharmacists Heather Harrison1; Fiona McMillan1; Ailsa Power1; Harry.
Global and national approaches to reducing the harmful use of alcohol
How does teamwork improve value. Dr Nils E
Nebojša Đurasović Vilnius, April 2017.
Second SDG Partnerships Webinar:
GARD/NCD Action Plan & 2011 UN Summit on NCDs
Chlamydia control in Europe
Loddon Campaspe Integrated Transport Strategy
Access Equity in Prisons in Africa A CALL FOR ACTION
NHS Education for Scotland Always Event Project
UN Support to SDG implementation in Seychelles.
NEWBORN SCREENING IN THE UK
Achieving World-Class Cancer Outcomes A Strategy for England
Judith Watt Director, NCD Alliance
Report of the Previous Meeting (is the overture of this meeting) The Third General Meeting of CARD – Agenda 1 18 May 2010.
Towards a Conducive Legal and Structural Environment
22nd International AIDS Conference Amsterdam, 24 July 2018
GENDER BASED VIOLENCE PROGRAMME SPECIALIST
Jean-Luc SION SANTE C3 Crisis management and preparedness in health
Knowledge gaps in formulating TB Control Policies for Prisons
NASTAD Update CSTE Annual Conference
4.2 CLIMATE SERVICES, ACTION AND RESILIENCE
Loddon Campaspe Integrated Transport Strategy
East Central and Southern Africa Health Community (ECSA HC)
AHPs as Agents of Change in Health and Social Care
Changing funding arrangements for physiotherapy education in England
United Nations Statistics Division DESA, New York
Knowledge sharing for implementation
Blood borne viral hepatitis action in Wales
The International Plant Protection Convention
Task Force on Target Setting and Reporting TFTSR
01/05/2019 Consultancy Business Intelligence Insight and Analysis CoP Specialty Skills 1.
Community Engagement to END TB Patient Support Group Sector.
Cg-18 Special Sessions Presentation Resolution 8.3
Dr Timothy Armstrong Coordinator
Evaluating Community Link Working in Scotland: Learning from the ‘early adopters’ Jane Ford, NHS Health Scotland Themina Mohammed & Gordon Hunt, NSS Local.
Arthritis and Musculoskeletal Alliance
Member Network Meeting
Presentation transcript:

Patient Activism Charles Gore

Activism – why? HIV shows it works in getting resources Cancer shows HIV is not a special case Resources are limited Health is as political as any other part of government In the UK, NHS is an idea Most devolved area of government

Activism – how? Direct lobbying of government Use of media to pressure government Getting support of elected representatives Understanding what’s in it for them Partnering with other groups (e.g. people who inject drugs, cancer, HIV) “If you think you’re too small to have an impact, try going to sleep with a mosquito in the room.” Anita Roddick

Activism in Scotland Those infected through the NHS, primarily the haemophilia community The clinical community, e.g. The Edinburgh HCV Consensus Conference, and HPS The Hepatitis C Resource Centre and The Hepatitis C Trust set up in Scotland Cross party group of MSPs The Scottish Hepatitis C Action Plan and its funding

Hepatitis activism globally 2007 World Hepatitis Alliance formed to run World Hepatitis Day 2008 Need to get a WHO resolution to make WHD official 2009 activism gets viral hepatitis onto WHO agenda 2010 resolution makes WHD official 2012 Alliance highlights lack of progress 2013 Alliance documents lack of progress for WHO 2013 Alliance holds meeting at World Health Assembly to press for more action 2014 new resolution proposed

Hepatitis activism globally WHO EB134.R18 (OP) 2. REQUESTS the WHO’s Director-General: (3) in consultation with Member States, to develop a system for regular monitoring and reporting on the progress in viral hepatitis prevention, diagnosis and treatment; (7) to examine the feasibility of and strategies needed for the elimination of hepatitis B and hepatitis C with a view to potentially setting global targets; (10) to lead a discussion and work with key stakeholders to facilitate equitable access to quality, effective, affordable and safe hepatitis B and C treatments and diagnostics; (OP) 3. CALLS upon all relevant United Nations funds, programmes, specialized agencies and other stakeholders: (1) to include prevention, diagnosis and treatment of viral hepatitis in their respective work programmes and work in close collaboration; (2) to identify and disseminate mechanisms to assist countries in the provision of sustainable funding for prevention, diagnosis and treatment of viral hepatitis. Charity Registration No. 1104279 Scotland Charity Registration No. SCO39914

Activism in Scotland – continued… Scotland has made a big investment in HCV Need for continued commitment Celebrate Scotland’s achievements Need to regularly bring the human impact of having/clearing HCV to MSPs’ & media attention Need to sell everyone on the concept of elimination

Activism in Scotland – continued… THANK YOU