What do Neonatal Networks want from NNAP? Rebecca Lemin

Introduction Rebecca Lemin Manager of the South West Neonatal Network 12 Units Geographically large - 250 miles 60,000 birth rate

Health Warning……

Questions asked……. Does the data from NNAP/NDAU come in a useful format? Does it come in the right frequency ? Is NNAP online useful – do you use it? Are the indicators sustainable/right ? Do you have any questions in regards to the sources of info used and should anything be streamlined? Could Networks do anything more to inform units about NNAP data?

Neonatal Networks Data Teams 80% of all Networks have data analysts All have access to Badgernet across all their units Networks collaborate closely with Data Leads from across their units. Much more skilled in cleaning, analysing and presenting data Using data to support more complex work programmes e.g. Transformation programmes, large scale service reviews, research, projects. All Networks produce dashboards for Units/NHSE – Encompasses Badgernet/NNAP/VON data

Does the data from NNAP come in a useful format? User friendly, Good mixture of graphs, narrative and tables. Concerns over methods to communicate data: Too many emails – diminishes importance Emails draconian and impersonal – esp when communicating to outliers Difficulty in getting timely responses from NNAP – particularly to emails Trend data not east to analyse Suggestions More personal approach – similar to VON – make direct contact with units. Ready made presentations for Clinicians to share locally NNAP to understand better how Networks use data and what skills they have.

Does it come in the right frequency ? Yes Happy with reductions in time lags Units likely to access it quarterly or as and when required. Some Networks reported quarterly use to populate Network Dashboards Other Networks only accessed data yearly – to obtain Annual Report. Monthly reports not felt to be necessary.

Is NNAP online useful – do you use it? Mixture of awareness re NNAP online. Question about who the audience of NNAP online is? Queries raised over the ‘patient friendly’ nature of the website Limitations of online site Can only compare 2 networks, 4 hospitals at a time Cant compare all units within a network area. Only 2 yrs of data online Value to Networks Feedback that one clinician uses it to show staff performance against other local hospitals Suggestions Further promotion to Network and Clinicians Consideration of parent audience

Are the indicators sustainable/right ? Too many – need streamlining. Increasing Maternity Measures – Not direct impact on Neonatal Activity/process focused – Not outcomes Do we have the best indicators for what we are wanting to measure? – e.g. Breast Milk at discharge, two yr follow up. Uncertainty about new indicators - E.g Term Admission Indicator, parents on ward rounds – What is it telling us? Effort needed in defining clinical terms more closely – E.g using better denominator data such as live birth rates NNAP indicators drive Badger queries causing difficulties in data entry Streamlining between NNAP and Badgernet - haphazard

Continued……. Suggestions Remove Maternity focused measures. Use live birth rate as denominator Rather than developing additional indicators - focus on improving entry/reducing variability of data already entered Increased clinical rather than process indicators e.g. CLD, HO rates, Line related sepsis, Bile stained aspirates. Links to national work programmes to develop relevant targets e.g. Atain Increased communication with Badgernet to streamlined process and iron out recording issues. Increased frontline teaching to staff on recording and expectations

Could Networks do anything more to inform units about NNAP data? Good communications and dissemination with Units - Proactive. Satisfaction with current methods of communication between NNAP and networks. Missing data useful All Networks have data analysts /direct access to Badgernet – diminished usage. Suggestions Would welcome greater assessment of data accuracy: e.g. % of data fields changed NNAP to support networks in improving data accuracy across units