PPI Knowledge Transfer Event Current status of PPI Ijeoma Uchegbu PPI Knowledge Transfer Event DEC London

PPI KTE Survey AIM was to understand the status of patient and public involvement in the NIHR DECs and HTCs DISSEMINATED Within DEC and HTC organisations Lay members Non-lay members Twenty eight (28) RESPONDERS to the survey Information used to inform the KTE

About responders (1)

About responders (2)

Current PPI activities

Future PPI activities

Comparison of current & future activities

“Other” “Activities vary from project to project” - unable to answer question Focus groups Group Discussions “Awareness raising” Input Into KTE Social media dissemination Yearly review Identification of need Co-design technology PR and communication

Challenges faced incorporating PPI into research Engaging researchers/clinicians/industry Recruitment of lay members with an interest in the research Understanding lay member capacity to be involved in research Knowing how much to expect[ations] Obtaining funding for PPI research activities Deadlines and timescales Variations in involvement from different researchers Gaps in experience and knowledge Training of lay and non-lay members Lack of national policy describing “how to” Understanding of ethical processes for involving patients in research Time consuming

Workshop - Challenges Which challenges are most important? Please vote for two challenges you feel are most important Now, within your groups please discuss your allocated challenge Describe challenge Who is affected What impact does it have How to mitigate negative impact You have 20 minutes to discuss within your groups before a whole group discussion about challenges led by appropriate group If you have any time have time, discuss other challenges