Lung Cancer Europe (LuCE),

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Presentation transcript:

Lung Cancer Europe (LuCE), Ewelina Szmytke Lung Cancer Europe (LuCE), Association For The Fight Against Lung Cancer, Poland and ELF Council

Lung cancer patient priorities WHY? To include the LC patients needs, To help the healthcare professionals understand these needs and create the best possible relation with the LC patient.

LUNG CANCER PATIENT PRIORITIES HOW? By developing: a patient-led guidance for patients and healthcare professionals to be implemented in healthcare centers. a patient priorities lung cancer website as a source of quality information in Europe Priorities identified through: online survey (in 15 languages), workshops in Brussels and Amsterdam, Worked closely with ERS lung cancer working group.

Patient advisory group (PAG) Formed to guide and inform the project 16 individuals from: Czech Republic, Denmark, Germany, Ireland, Italy, Poland, Spain and UK

PATIENT PRIORITIES LUNG CANCER WEBSITE LAUNCHED World Lung Cancer Day - 1 August 2016 www.europeanlung.org/lungcancer Basic and detailed information Latest research Videos from PAG members Support organisations Information in other languages Priorities for treatment

OCCUPATIONAL HEALTH PROJECT WHY? To provide information for people who may be worried about the impact of their workplace on their lung health To help people think about possible causes of their lung problems when they go to see their doctor HOW? Using a quiz or interactive tool to get them interested Information to be provided on a website