Pain in Ehlers-Danlos Syndrome Is Common, Severe, and Associated with Functional Impairment  Nicol C. Voermans, MD, Hans Knoop, PhD, Gijs Bleijenberg,

Slides:



Advertisements
Similar presentations
Treatment of postherpetic neuralgia: a review of therapeutic options Charles E. Argoff, MD, Nathaniel Katz, MD, Miroslav Backonja, MD Journal of Pain and.
Advertisements

Validation of the Wisconsin Brief Pain Questionnaire in a Multilingual South African Population Noko Mphahlele, MSc, Duncan Mitchell, PhD, Peter Kamerman,
Spinal Cord and Peripheral Nerve Stimulation Techniques for Neuropathic Pain Oscar A. de Leon-Casasola, MD Journal of Pain and Symptom Management Volume.
Comparison of the Constipation Assessment Scale and Plain Abdominal Radiography in the Assessment of Constipation in Advanced Cancer Patients Kittiphon.
Palliative Medicine Fellowship: A Study of Resident Choices
Fatigue in Advanced Cancer Patients: Congruence Between Patients and Their Informal Caregivers About Patients' Fatigue Severity During Cancer Treatment.
Chronic Pain Management in Older Adults: Special Considerations
Managing Metastatic Bone Pain: The Role of Bisphosphonates
Wen Jing Chung, MD, MS, Gregory H. Pharo, DO 
The Public Health Strategy for Palliative Care
Palliative Care in Norway: A National Public Health Model
An Effective Treatment of Severe Complex Regional Pain Syndrome Type 1 in a Child Using High Doses of Intrathecal Ziconotide  Michael Stanton-Hicks, MD,
Chronic Pain Management in Older Adults: Special Considerations
Opioids for Cancer Breakthrough Pain: A Pilot Study Reporting Patient Assessment of Time to Meaningful Pain Relief  Giovambattista Zeppetella, FRCP  Journal.
Why Now? Timing and Circumstances of Hastened Deaths
Pain in Ehlers-Danlos Syndrome Is Common, Severe, and Associated with Functional Impairment  Nicol C. Voermans, MD, Hans Knoop, PhD, Gijs Bleijenberg,
Edmonton, Canada: A Regional Model of Palliative Care Development
Psychostimulants for the Management of Cancer-Related Fatigue: A Systematic Review and Meta-Analysis  Ollie Minton, MSc, Alison Richardson, PhD, Michael.
Patricia Ann Repar, DMA, Steve Reid, MD, PhD 
Fatigue in Advanced Cancer Patients: Congruence Between Patients and Their Informal Caregivers About Patients' Fatigue Severity During Cancer Treatment.
The Effects of Cognitive Behavioral Therapy for Postcancer Fatigue on Perceived Cognitive Disabilities and Neuropsychological Test Performance  Martine.
What Palliative Care-Related Problems Do Patients Experience at HIV Diagnosis? A Systematic Review of the Evidence  Victoria M. Simms, MSc, Irene J. Higginson,
What Influences Patients’ Decisions on Artificial Hydration at the End of Life? A Q- Methodology Study  Catherine Malia, MSc, Michael I. Bennett, MB, ChB,
Patient-Reported Pressure Ulcer Pain: A Mixed-Methods Systematic Review  Claudia Gorecki, MSc, S. José Closs, PhD, RGN, Jane Nixon, PhD, RN, Michelle Briggs,
Geographic Variation in Hospice Use in the United States in 2002
Double-Blind, Placebo-Controlled Trial of Lamotrigine in Combination with Other Medications for Neuropathic Pain  Marianne Silver, MS, David Blum, MD,
Hella E. Brandt, MA, Marcel E. Ooms, MD, PhD, Miel W
Self-Reported Constipation in Patients With Advanced Cancer: A Preliminary Report  Wadih Rhondali, MD, Linh Nguyen, MD, Lynn Palmer, PhD, Duck-Hee Kang,
Development and Initial Validation of the Three-Levels-of-Needs Questionnaire for Self- Assessment of Palliative Needs in Patients with Cancer  Anna Thit.
The Costs and Savings of a Regional Public Palliative Care Program: The Catalan Experience at 18 Years  Silvia Paz-Ruiz, MD, Xavier Gomez-Batiste, MD,
How to Measure the International Development of Palliative Care
Jean-Pierre Van Buyten, MD  Journal of Pain and Symptom Management 
First Panic Attack Episodes in Head and Neck Cancer Patients Who Have Undergone Radical Neck Surgery  Ken Shimizu, MD, PhD, Hiroya Kinoshita, MD, Tatsuo.
What Can We Learn About the Spiritual Needs of Palliative Care Patients From the Research Literature?  Mark Cobb, MA, Christopher Dowrick, MD, FRCGP,
Eugene Murray, BBS, MLitt (Econ) 
Parent Perceptions of Child Vulnerability Are Associated With Functioning and Health Care Use in Children With Chronic Pain  Mark Connelly, PhD, Kelly.
David Clark, PhD, Michael Wright, PhD 
Redefining Appropriate Treatment Expectations
Amy Z. Boelk, PhD, MSSW, Betty J. Kramer, PhD, MSSW 
Spinal Cord Stimulation for Critical Leg Ischemia: A Review of Effectiveness and Optimal Patient Selection  Dirk Th. Ubbink, MD, PhD, Hester Vermeulen,
Jodi L. Hannan, MD, Steven M. Radwany, MD, Terry Albanese, PhD 
Barrie R. Cassileth, PhD, Andrew J. Vickers, PhD 
Palliative Care Needs and Symptom Patterns of Hospitalized Elders Referred for Consultation  Aaron M. Olden, MD, MS-CLI, Robert Holloway, MD, MPH, Susan.
Robert L. Jayes, MD, Robert M. Arnold, MD, Erik K. Fromme, MD 
Susan C. Miller, PhD, Dan K. Kiely, MPH, MA, Joan M
The Brief Fatigue Inventory: Comparison of Data Collection Using a Novel Audio Device with Conventional Paper Questionnaire  Edward Pallett, PhD, Patricia.
Sigridur Gunnarsdottir, RN, PhD, Ronald C
Use of Personalized Decision Analysis in Decision Making for Palliative vs. Surgical Management of the Oldest-Old Patients With Localized Skin Cancer.
U.S. Hospice Benefits Journal of Pain and Symptom Management
Charlene L. Taylor, RN, BSN  Journal of Pain and Symptom Management 
Is the B12/CRP Index More Accurate Than You at Predicting Life Expectancy in Advanced Cancer Patients?  Filipa Tavares, MD  Journal of Pain and Symptom.
Development and Reliability Testing of the Victoria Bowel Performance Scale (BPS)  G. Michael Downing, MD, Craig Kuziemsky, PhD, Mary Lesperance, PhD,
Association Between Symptom Distress and Survival in Outpatients Seen in a Palliative Care Cancer Center  J. Lynn Palmer, PhD, Michael J. Fisch, MD, MPH 
A New Approach to Eliciting Patients' Preferences for Palliative Day Care: The Choice Experiment Method  Hannah-Rose Douglas, PhD, Charles E. Normand,
Margot E. Kurtz, PhD, Jay C. Kurtz, PhD, Charles W
Tomoyuki Kawada, MD  Journal of Pain and Symptom Management 
Perceived Success in Addressing End-of-Life Care Needs of Low-Income Elders and Their Families: What Has Family Conflict Got to Do With It?  Betty J.
Reporting of Funding Sources and Conflict of Interest in the Supportive and Palliative Oncology Literature  David Hui, MD, MSc, FRCPC, Akhila Reddy, MD,
Clinical and Economic Impact of Palliative Care Consultation
A Meta-Analysis of the Relationship Between Response Expectancies and Cancer Treatment-Related Side Effects  Stephanie J. Sohl, PhD, Julie B. Schnur,
Noko Mphahlele, MSc, Duncan Mitchell, PhD, Peter Kamerman, PhD 
Coping Strategies in the Presence of One's Own Impending Death from Cancer  Lisa Sand, MSW, PhD (C), Mariann Olsson, MSW, PhD, Peter Strang, MD, PhD  Journal.
Using the Symptom Monitor in a Randomized Controlled Trial: The Effect on Symptom Prevalence and Severity  Johanna Hoekstra, MA, Rien de Vos, PhD, Nico.
Botucatu, Brazil: A Regional Community Palliative Care Model
Amy P. Abernethy, MD  Journal of Pain and Symptom Management 
Optimizing Decision Making and Resource Allocation in Palliative Care
Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals  Jane Hopkinson, PhD, RGN, Jessica.
Cancer Symptom Clusters: A Validation Study
Associations Between Physical Activity and Quality of Life in Cancer Patients Receiving Palliative Care: A Pilot Survey  Sonya S. Lowe, MD, MSc, Sharon.
Physical Activity Behaviors in Individuals with Multiple Sclerosis: Roles of Overall and Specific Symptoms, and Self-Efficacy  Erin M. Snook, MS, Robert.
Presentation transcript:

Pain in Ehlers-Danlos Syndrome Is Common, Severe, and Associated with Functional Impairment  Nicol C. Voermans, MD, Hans Knoop, PhD, Gijs Bleijenberg, PhD, Baziel G. van Engelen, MD, PhD  Journal of Pain and Symptom Management  Volume 40, Issue 3, Pages 370-378 (September 2010) DOI: 10.1016/j.jpainsymman.2009.12.026 Copyright © 2010 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 1 Inclusion and exclusion of EDS patients in this study. MPQ=McGill Pain Questionnaire. Journal of Pain and Symptom Management 2010 40, 370-378DOI: (10.1016/j.jpainsymman.2009.12.026) Copyright © 2010 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 2 Pain occurred in the highlighted regions in at least 40% (gray) and 50% (dark gray) of EDS patients; pain was most frequently localized in neck, shoulders, hips, forearms, and legs, which might reflect a pattern of musculoskeletal pain. Journal of Pain and Symptom Management 2010 40, 370-378DOI: (10.1016/j.jpainsymman.2009.12.026) Copyright © 2010 U.S. Cancer Pain Relief Committee Terms and Conditions