Consumer Health Informatics LIS 4785 Introduction to Health Informatics Fall 2015, Week 11-2 Instructor: Dr. Sanghee Oh

Consumer Health Informatics

Consumer Health Informatics The area of health informatics that focuses on the ______________________________ to ensure that it interacts directly with the consumer, with or without the involvement of healthcare providers. The analysis and modeling of _____________and information needs, ___________________ that support consumers obtaining high-quality information, and ____________________ that allows for the integration of consumer needs in clinical information management

E-health The use of telecommunication platforms, mobile and ubiquitous hardware and software and advanced information systems to support and facilitate healthcare delivery and education Support _______________ – namely, the transition from a ____________ where the patient is the recipient of care service to an ___________ where the patient is informed and involved in or even leads the decision-making processes

E-health Platforms Bridge both the clinical and non-clinical sectors and includes both individual and population health-oriented tools, such as Telehealth applications Web portals Personal health records Online services for patient and family support groups Consumer health information services Social media Potable or wearable monitoring tools

Use of Social Media in E-Health Powered by Health 2.0 The use of ____________ to promote __________ between patients, their caregivers, medical professionals, and other stakeholders in health Focused on the user experience bringing in the principles of ________________ ______________, in that they both create data and present data to the user in order to help improve decision making ____________________ The process of obtaining needed services, ideas, or content by soliciting contributions from a large group of people, and especially from an online community, rather than from traditional employees or suppliers

PatientsLikeMe: The Next Generation of Healthcare <iframe width="560" height="315" src="https://www.youtube.com/embed/uMRjsEPVUKM" frameborder="0" allowfullscreen></iframe> https://www.youtube.com/watch?v=uMRjsEPVUKM

Use of Social Media in E-Health ______________ Blogs are run by a community of healthcare insiders and experts and publishes news, opinions, and features about different health settings and sectors

Use of Social Media in E-Health ______________ Tweets may provide a venue to identify potential misuse or misunderstanding of antibiotics, to promote positive behavior change and to disseminate valid information Global health information distribution and prevention

Use of Social Media in E-Health ______________ Health community wiki, a collaborative website authored by a group of patients or by medical professionals

Online Communities in E-Health 3 types of supports that health online groups share one another are Informational support Emotional support Instrumental support

Online Communities in E-Health 3 types of supports that health online groups share one another are ______________________ Exchange of advice, explanations, opinions, and experiences Bolster interpersonal connectedness and self-esteem Reduce distress through the expression of feelings, such as anxiety, concern, empathy, or reassurance Exchange of practical assistance and material goods Financial support, transportation, or help with household chores

Social Network Sites ____________________ A website where consumers may be able to find health resources at a number of different levels and support the accessibility and exchange of health information for consumers Support interaction or communication of patient-to-patient, patient-to-provider, and provider-to-provider PatientsLikeMe Everyday Health HealthSpace GroupLoop

Reliability Concerns The information on health social network sites is crowd-sourced and thus may unreliable or inaccurate. Postings from online communities could distribute persuasive, personally tailored but harmful misinformation. Consumers may have health beliefs to engage in a group discussion with other consumers who can share and validate view points that may or may not be true.

Opportunities of Social Media in Health Patient engagement by Health 2.0 Replacement of traditional forms of patient-physician or research subject communication (e.g., emails) to social media Social network sites as ___________________________ Health education and prevention

Barriers to Social Media Use in Health ____________________________ Consumers’ inaccessibility due to lack of knowledge or technology Consumers’ low health literacy Legal concerns of providers

Challenges in E-Health Applications ____________________ A person’s right to be free from and refuse interference, attention, observation, and other types of invasion In healthcare, privacy is assurance that one’s health information is collected, accessed, used, retained, and shared only when necessary and only to the extent necessary and that the information is protected throughout its life cycle using fair privacy practices consistent with applicable laws, and regulations, and the preferences of the individual. The obligation of every HIPPA-covered entity to enact and enforce policies that protect the patent’s privacy. HIPPA compliance with the privacy and confidentiality standards is greatly affected the design and functions of e-health applications