Partners in+care Round Table: African-American & Latina Women’s Health March 23, 2017 1:00-2:00 pm ET Michael Hager & Deloris Dockrey, NQC Kneeshe Parkinson & Dawn Trotter, end+disparities Spokespersons Jannis Evans, Missouri Department of Health and Human Services Classie McMurry, Aaron E Henry Community Health Center Michael Welcome to our March Partners in+care Round Table. On behalf of the National Quality Center, we are excited to continue onward with the end+disparities Learning Exchange; one of our most innovative and important improvement initiatives to-date in partnership with the HRSA HIV/AIDS Bureau. Partners in+care is the consumer involvement aspect of the Learning Exchange. Over the course of the exchange, we will focus in on how to involve the consumer community in this important work based on our monthly overall topics.

Before we start… Please type your name, organization, city and state in the chat room Michael Please note that this webinar is being recorded for later replay by those who missed the call. Before we start our webinar, let’s take a moment and ask participants to introduce themselves via our chat room, which can be found on the right hand side of your screen, just underneath the participants section. There is a small box labelled Chat. Please enter your name, organization, city, and state so others can see who we have on the call today.

Ground Rules for Webinar Participation Actively participate and write your questions into the chat area during the presentation Do not put us on hold Mute your line by pressing the microphone button to the right of your name Please complete the post-webinar evaluation This call is recorded for replay for those who missed the webinar Michael Ground rules for todays webinar: - Actively participate and write your questions into the chat room; we have several staff and consultants who will answer your comments – I want to thank them and HAB representatives - Please mute your phone line; you can press the microphone button to the right of your name - Please complete the post-webinar evaluation, which will be sent to your email at the conclusion of the webinar. We look forward hearing from you. - As stated earlier the call will be recorded for replay for those who missed the webinar

Clemens Steinbock, MBA Director, NQC Michael introduces Clemens and turns it over to Clemens to provide words of welcome Clemens Steinbock, MBA Director, NQC

The end+disparities Learning Exchange a 9-month initiative that promotes the application of improvement interventions to reduce HIV-related disparities in four key subpopulations while building and sustaining a community of learners among Ryan White HIV/AIDS Program recipients. The Learning Exchange offers informational opportunities by content experts and utilizes the power of peer learning to facilitate local improvement efforts on eliminating HIV-related disparities. Michael

Communities of Learning: collaborative, QI campaign, Regional Groups Consultation: On/off-site coaching of recipients to advance their clinical quality management programs Together, we can make a difference in the lives of people with HIV. NQC provides assistance to RWHAP recipients to improve HIV care since gaps in HIV care still exist and advances are uneven across HIV populations. 250 recipients participated in 28 Regional Groups 51% of all recipients joined the largest HIV QI campaign; viral suppression increased from 70% to 76%, a statistically significant improvement Training and Educational Fora: monthly webinars, advanced trainings, online QI tutorials 40% of RWHAP recipients received TA and 95% would recommend TA to others 40 online QI tutorials are available; over 35,000 have been taken so far Intensity Information Dissemination: monthly newsletters, websites, publications, exhibits, QI awards Michael NQC is funded by the HRSA HIV/AIDS Bureau since 2004 and provides technical assistance to all RWHAP recipients to build their sustainable clinical quality management programs. Over 90% of all recipients have accessed intensive NQC offerings and take advantage of our various services. The Learning Exchange is an extension of these offerings. As you see in this graphic, NQC provides opportunities To participate in monthly webinars to learn more about QI – next week’s webinar focuses on the 2016 NQC Award winners To attend our 4 3-day face-to-face training programs or take one of 40 online tutorial we have available To request onsite assistance by our pool of QI experts To join one of our 28 Regional Groups, a local community of learning If you would like to learn more, please visit our website at NationalQualityCenter.org. over 90% of the 587 RWHAP recipients accessed NQC services ~1,300 individuals (61% of recipients) graduated from 45 three-day advanced trainings NationalQualityCenter.org | 212-417-4730

Agenda Welcome & Introductions Our Stories Common barriers and facilitators to care HIV self-management Q & A Session Deloris Our webinar today is focused on women’s health and ways we can all help our African-American and Latina sisters. Afterwards, we will open up the webinar for your questions in our Q&A session. We’ll start by sharing stories of experience of African-American and Latina women living with HIV and we’ll have an opportunity for some of you to share your women’s health stories, too, if you are comfortable doing that.

Learning Objectives Explain common reasons why African American and Latina women don’t stay in HIV care and don’t achieve viral suppression. Describe ways African-American and Latina women can get more involved in their healthcare. Name two or three ways that women can support each other to achieve optimal health outcomes. Deloris Read the learning objectives.

Our Stories: African-American & Latina Women Deloris: It’s time for us to share our stories as women living with HIV. We’ll hear perspectives from diverse backgrounds.

Kneeshe Parkinson Learning Exchange Spokesperson St. Louis, MO Deloris, introduce Kneeshe: Kneeshe has worked for Washington University School of Medicine-Project Ark for  14yrs in many capacities for PLWH. Kneeshe is currently the consumer liaison in her region who has worked  countless hours over the last 24 months working on Quality Improvement efforts for PLWHA alongside the Missouri Statewide Quality Management Team in collaboration with H4C Continuum Collaborative spearheaded by the National Quality Center.  Kneeshe (7 minutes) Share your story – why are you involved in clinical quality management? What is the biggest motivator for you? What is your biggest hope for HIV care? What is the biggest challenge you for ending disparities in HIV care? What advice do you have for other people living with HIV to take charge of their lives and also to help others in their community?

Dawn Trotter Learning Exchange Spokesperson Buffalo, NY Deloris introduce Dawn: Dawn Trotter was diagnosed with HIV in 2007 and a heart condition soon after, given a prognosis that she would likely live for one year. Her uncertainty about her health mobilized her to learn as much about it as possible and inspired her to share what she had learned with others as overwhelmed as she had been. A mother of three, she has gone on living far beyond that year and has served on the NYS AIDS Institute Consumer Advisory Board since 2014 and became Co-Chair of the Peer Certification Board in 2016. Currently, Dawn works full time at Evergreen Medical Group as a Retention Support Assistant, applying her passion to maintain HIV positive people in healthcare and promoting their adherence toward viral suppression to her daily work. Dawn (7 minutes) Share your story – why are you involved in clinical quality management? What is the biggest motivator for you? What is your biggest hope for HIV care? What is the biggest challenge you for ending disparities in HIV care? What advice do you have for other people living with HIV to take charge of their lives and also to help others in their community?

Jannis Evans Advocate Deloris – introduce Jannis Jannis Evans is a graduate of Washington University in St. Louis, majoring in Urban and Regional Studies. She began a career in health quite by accident. She volunteered with an AIDS service agency as a favor to a friend,and the rest is history – a history that spans 25 years. She has worked as a case manager, an outreach testing coordinator, a Health program coordinator in the Missouri Office of Minority Health, and a health educator in the Bureau of HIV/STD/Hepatitis. Recently retired from the state, she had not retired from the work. Jannis now contracts with the HIV Regional Resource Network (region 7)of the Federal Department of Health and Human services, the University of Missouri- Kansas City, and several other community based organizations throughout the state. Her targeted populations include women of color, older adults, and faith based organizations. She is the mother of the amazing women and Granny girl to Gavin the Magnificent! Jannis (7 minutes) Explain background working in social justice What are major social/structural barriers to women of color achieving health equity What is the most important thing to remember when working with women of color on achieving optimal health? What are simple solutions the average person to take up to help women of color achieve health equity

Classie McMurry Aaron E Henry Community Health Center Deloris – introduce Classie Mrs. Classie McMurry, a native of Batesville, MS is the Consumer Community Health Worker of Aaron E. Henry Community Health Center with the Ryan White Program.  Through her love for people and her potential to inspire change, she inquired about becoming a consumer community worker after being a member of the Consumer Advisory Board (CAB) Committee and she was later hired in June 2016. Classie McMurry is no stranger to the Healthcare Profession and holds a CNA certification from Manchester Manor of Birmingham, Ala. Before coming to AEHCHC in 2016, she worked many years for diverse range of organizations; including Southern Care Hospice, Providence Assisted Living, Trinity Mission Healthcare, and Golden Living Nursing Home. Classie background in the Medical profession provides the perfect foundation for CCHW with the Ryan White Org. of AEHCHC. Her duties for Ryan White consist of providing a bridge between providers and HIV consumers that facilitates the medical psychosocial care of the clinic. Classie loves to help consumers to accomplish their goal concerning their care, and not feel as if they are on this journey alone. Her own personal story of living with HIV for over twenty -five years has and is still inspiring so many clients. As the new elected Consumer Advisory Board President, she looks after the consumers input and guidance from patients regarding the desired and delivery of care. Mrs. McMurry work consist of her working in a team setting as one component of the client coordinated care. The CCHW is an advocate for the client and help maintain a relationship and trust between client and providers. The CCHW is expected to serve as a role model, which Classie certainly does, she helps access medical service, arrange transportation if needed, deliver meds when needed. Mrs. Classie (7 min) Talk about women in the south based on everything else you have heard. Are the stories you heard reflective of what you see in the south or do you see something different? What are the core problems experienced by women you serve? What are the root causes to problems that prevent women of color from achieving health equity If you could propose 1-2 concrete steps that folks can take to improve their health or healthcare, what would those be?

Your Stories Partners in+care Deloris Facilitate a discussion among people on the phone. This section needs to end by 135pm ET. We can always come back for more sharing after the rest of the program. Try to find hope and opportunity in even the darkest, most horrifying story.

Barriers and Facilitators to Care Deloris What are the most common barriers and facilitators to care? Let’s start with barriers. We’ll make a list in a whiteboard and then will come back to facilitators to care. If there is time we’ll try to match facilitators to barriers they help overcome.

Self-Management Deloris What tools and resources do you use for self-management and self-care? What works for you and the people you come in contact with? Can we show anyone any websites?

Q&A Session Deloris Hopefully we still have time for questions. Have we had any questions in the chat room that haven’t been answered? OR are there any themes from the chat room we want to bring out into the open discussion? Has anyone had any AHA moments today? Has anyone learned anything that they want to apply in their own care settings (either as a provider or a consumer)?

Next Steps and Activities in end+disparities Coming Up! Next Steps and Activities in end+disparities Michael

Partners in+care Roundtable Discussions Each date is a clickable link with additional information to save in your calendar! March 23: African-American and Latina Women Health April 27: Youth (13-24 years) Health May 25: Sustaining Our Gains June 22: Greater Than the Sum of its Parts Michael Each month we focus on another topic. Partners in+care roundtables will occur on the fourth Thursday of the month from 1-230pm ET. When we develop content for consumers to join the discussion, we’ll be sure to focus in on our challenges and opportunities in each area and will explore ways consumers can get involved in the work. The main toolkit available to us is the Partners in+care toolkit presented today, but there is plenty of room to introduce new tools and resources that are of interest to you

end+disparities Learning Exchange Webinars Each date is a clickable link with additional information to save in your calendar! April 20: Youth (13-24 years) Health May 18: Sustaining Our Gains June 14: Greater Than the Sum of its Parts Michael

Office Hours Opportunities March 31: Comprehensive Health Needs of African-American and Latina Women Office Hours discussions are informal opportunities to dive deeper into the issues They are participant led and directed based on YOUR questions! Michael Office Hours discussions are informal opportunities to dive deeper into the issues They are participant led and directed based on YOUR questions! Occur on various Fridays from 1-2pm ET (check the calendar on our website for exact dates and topics!)

Closing Remarks Clemens Steinbock

end+disparities Video Visit our NQC YouTube channel to see our 3min video about disparities in HIV care - www.youtube.com/NationalQualityCtr Michael A reminder to check out our video and the website! Another cool informational tool that we have developed is a short animated video about disparities in HIV care and outcomes. Please take a look and feel free to share with others. 23

THANK YOU! Michael

212-417-4730 NationalQualityCenter.org Info@NationalQualityCenter.org Michael 25