Information prescriptions: joining up the service pieces This is a title page and should only be used at the beginning of a presentation Ruth Carlyle Information and Support Policy Lead

Overview Charities in health information and public policy How it all fits together Charities in health information and public policy Information prescriptions Joining up the service pieces This is a general content page when using bullets.

Charities in health information and public policy Direct service provision Developing services in partnership Influencing public policy This is a general content page when using bullets and secondary bullets

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Services in partnership Warminster Library Ruth: Regardless of whether it is a building, a leaflet, a website or a conversation, the same basic elements apply: An introductory space, so that you can be sure that it is the service that you want. Just as I told you which session this is and gave you the chance to leave, you need a safe introduction that provides you with a context. The main body of the building, leaflet or other service should provide the core of the information that most people need, generally about living with cancer. Finally, we need an option for further information – which may be the evidence base, a list of further sources of support or, in one of our services, a space where you can talk to someone or cry. This is a floorplan of our service within the public library in Warminster. It is one of our smaller services, but you can see that it contains the basic elements: when you step inside you come first to an introductory space; then the main service; and finally, if you need it, a more discreet space.

Influencing public policy Why? Joining up the pieces CILIP Manifesto ‘Fund and enable the effective co-ordination of health information so that everyone who needs it – patients, carers, doctors, nurses and planners – will be able to find the necessary information to meet their needs.’ ‘Fund and enable the effective co-ordination of health information so that everyone who needs it – patients, carers, doctors, nurses and planners – will be able to find the necessary information to meet their needs.’

Influencing public policy Examples of activity Scotland NHS Inform – cancer as model Northern Ireland Information within cancer framework Wales Raising profile of both cancer information and health information England Information prescriptions This is a general content page when using bullets.

How much do you already know? Involved in piloting information prescriptions Discussed information prescriptions with colleagues or at conferences Read about information prescriptions Not heard of information prescriptions

Policy behind information prescriptions ‘Our Health, Our Care, Our Say’ Department of Health pilots (2007-08) ‘Cancer Reform Strategy’ National Cancer Action Team pilots (2008-09)

The vision NHS Choices Information Prescriptions System Personalised summary: Short sections of text Images Printed personal prescriptions National information pathways and resources Interfaces: Acute care Primary care Community settings (library, pharmacies) Information and support centres NHS Choices content Local content Email personal prescriptions NHS Pad to prescribe when no PC Dispense using system

Booklet - to Pathway – to Personalisation Lung biopsy This test involves taking a sample of cells from the lung for examination under a microscope. You may have it done during a CT (computerised tomography) scan, or with an x-ray, to make sure the needle is in the right place, You will have a local anaesthetic to numb the area. After this you’ll be asked to hold your breath for a few seconds while a thin needle is passed through your skin and into the lung. The biopsy is sometimes slightly uncomfortable, but it only takes a few minutes.

Developments with NHS Choices Extract from presentation to Clinical Advisory Board, 27th January 2010 Developments with NHS Choices System for all long-term health conditions Separate URL for direct access Self-prescribing and professional prescribing General support programme by the Department of Health Specific implementation in cancer led by the National Cancer Action Team

Opening page Search by cancer type Search by treatment (e.g. chemotherapy) Optional local search

Content selection page Four content types: NHS Choices content Pathway content Local content Sections of text for personalised cancer information prescriptions

Expanded pathway selection Content selected by pathway stage PDFs of documents, with option of video and audio files

Information Prescription preview Options: email, print or save file

Range of options for prescribing Think about options and add your own: Combined prescribing and dispensing Paper prescribing for dispensing elsewhere General prescribing and specialist dispensing (e.g. financial advice) Supported access for self-prescribing

What is Macmillan contributing? Bringing together Department of Health and Cancer agendas Keeping information prescriptions on the political agenda Co-developing pilot system Influencing the official delivery system Funding posts to co-ordinate implementation

Why is Macmillan involved? Information tailored to need More co-ordinated patient experience Integration of local information services

Joining up services? How can information prescriptions Join up information services? Threaten information services? How can you turn information prescriptions into an opportunity for your services?

What do you think? Information prescriptions are… A threat to my service Just one change and make no difference A possible opportunity A definite opportunity