Empowering Disabled Consumers Through Personal Health Records Ron Manderscheid, Ph.D. Constella Group, LLC & Johns Hopkins University

Three Major Points SCIENCE: Supports empowerment and the application of technology to PHRs for disabled consumers. CASE STUDY: Supports empowerment of disabled mental health consumers and PHRs for their use. BUSINESS CASE: Supports a specific focus on PHRs for persons with disabilities.

The Science

Institute of Medicine Framework “Crossing the Quality Chasm”

Institute of Medicine Framework “We have a large and growing chasm between actual healthcare delivery and the quality of the healthcare we need.”

Institute of Medicine Framework Key principle: “The patient is the ‘true north’ of the health care system.

Institute of Medicine Framework Key service goals: SAFE PERSON-CENTERED EFFECTIVE EFFICIENT EQUITABLE TIMELY

Institute of Medicine Framework Necessary Strategies: Strategy 4. Using Information Technology

The Case Study

Mental Illness Population Mental and Substance Use Conditions: Any Disabling Adults 25% 6% Children and Adolescents 20% 9-13%

Mental Illness Population Those with disabling conditions use approximately 80% of all financial resources expended for mental health care.

Mental Illness Population Specialty Care: $120 Billion/Year ($400 per American) State Care (All Departments): $100 Billion/Year SSI/SSDI: $19+ Billion/year Medicare: $41 Billion/Year (Exclusive of Pharmacy)

President’ New Freedom Commission on Mental Health Key principles: Foster consumer and family direction of care Foster recovery-oriented care

President’ New Freedom Commission on Mental Health Key goals: Goal 6. Technology is used to access mental health care and information.

The Business Case

Personal Health Records Persons with disabling conditions need personal health records to: Monitor health status Monitor health care use and quality Learn better approaches to self-care Monitor the expenditure of health care resources Maintain virtual contact with other consumers

Personal Health Records Persons with disabling conditions are highly motivated to: Monitor their personal health status Engage in effective self-help Achieve the best results from health care

Personal Health Records This attention to self help and effective care can pay financial dividends: Effective self-help reduces health care costs. High quality, effective care reduces the need for costly additional visits. Self-coordination of care reduces costly fragmentation.

A Hypothetical Care for chronic illnesses now costs in excess of $1 trillion per year. A savings of only 5% percent through PHRs for persons with disabilities would pay a dividend of $50 billion each year.

Bottom Line Empowering persons with disabilities through PHRs will lead to improved quality of care and reduced costs.

Contact Information Ron Manderscheid, Ph.D. Director, Mental Health and Substance Use Programs Constella Group, LLC 6003 Executive Boulevard, Room 416 Rockville, Maryland 20852 240-514-2607 (Voice) 301-787-1414 (Cell) 240-514-2601 (Fax) rmanderscheid@constellagroup.com www.constellagroup.com Enhancing human health around the world, every day