Charles Crawley Presidents update Nov 16 BSBMT Open Meeting Charles Crawley Presidents update Nov 16

National clinical trials network for stem cell transplantation NIHR support 4 year funding

National clinical trials network for stem cell transplant NIHR support Hub – based in Birmingham All transplant centres will be invited to join Support for trials nurses in 10 centres

Pivotal role for CTC NIHR badged Steering group for IMPACT Aim to work up 3 prospective studies per year Practice changing Investigator lead Deliverable NIHR badged

Timelines Nov 16 -Applications for Medical Director (closed). Nov 16 Trials proposals and work up. Jan-Feb 17 – Centre applications (clinical trials nurse support) July 17 – Trials nurse appointments Oct 17 – First patient entry

Clinical Review Group (CRG) Reformatted CRG Chair – John Snowdon Representatives NHS BT Anthony Nolan Paediatric BSBMT Regional reps 8 Patient reps 3

Commissioning intentions Policies agreed for aGvHD cGvHD Waldenstroms Second transplant Indications due to be considered in 2017 Lymphoblastic lymphoma PCNSL

Registry 7th Annual report 2008-13 long term outcomes 2014 transplant activity Era analysis 2002-7 vs 2008-13

2002-7 vs 2008-13 Overall Survival

2002-7 vs 2008-13 NRM

Data Management Support Completed Data Manager Survey Site visit program Data Management Workshop Working with transplant centres towards paperless reporting Improving metrics for data quality

Protocol Harmonisation Matt Collins Due to circulate summary of common protocols Agree a short list of 2-3 commonly agreed variants Publish on the BSBMT website Contribution to English language - protocologram

Scientific and Educational Days Education day – Today John Snowdon Scientific day – Wed 10th May 17 Karl Peggs/Persis Amrolia Education day Support for one team member from all centres to attend Ideas/suggestions

Hepatitis E Recommendation by SaBTo to provide HEV screened blood products in March 16 New SaBTo guidance imminent Likely universal screening Guidance on donor screening Outstanding questions management of positive patients and donors Post transplant screening Dietary advice

ACCEA 2016 David Marks (chair) Applications New Renewal Platinum 1 Gold Silver 3 Bronze

BSBMT Executive Standing down Stepping up Gordon Cook David Edwards Jenny Bryne

Elections President elect Autologous transplant representative Executive member

Quality Managers Forum Sarah Hotlby Next meeting – Thursday 3rd Nov

BSBMT Nurses Group Michelle Kenyon Meetings Southampton October 17 – Manchester combined with EBMT International Nurses Study Day