Social Media Policy: DE Recommendations Don S. Dizon MD Chair, Digital Engagement Director, Women’s Cancers, Lifespan Cancer Institute Director, Medical Oncology, Rhode Island Hospital Associate Professor of Medicine, Alpert Medical School of Brown University Social Media Policy: DE Recommendations

Overview Social media: SWOG: Collaborative Bidirectional input with stakeholders Integral for scientific cooperation, professional development, and promotion of SWOG and its members and member institutions. Social media: Breaks ground by providing a formal policy for a cooperative group. Encourages the use of social media professionally and responsibly SWOG: Overview

Get Involved SWOG Oncology on Facebook Membership by application Posts by members allowed (Subject to review) House rules are in place Twitter: @SWOG YouTube channel is live

Confidentiality and Privacy There is never a guarantee of complete privacy online 01 SWOG Members must avoid divulging confidential and/or protected information 02

Confidentiality and Privacy Obtain permission before posting pictures or other copyrighted information 01 Do not disclose any member or patient PHI 02 Information posted on SWOG’s FB page may not be suitable for other audiences 03 Confidentiality and Privacy

Respect Avoid conflict Clarify when necessary Understand your audience SWOG: nearly 12K members in >1K sites worldwide Situational awareness is key Respect

If engaging “for” or “on behalf of” SWOG, be clear If engaging as an individual, important to provide disclaimer Posting as an individual; not representing Institution or SWOG… Be aware of your privacy settings You are personally responsible, and potentially liable, for any content you publish. Transparency

Patient Engagement No Friending Avoid “friending” your patients Beware PHI Do not post patient images Like it or Not Avoid engaging with patient updates that include mention of personal information or specific medical condition. HIPAA Be sure to understand the 18 unique identifiers protected under HIPAA. Adherence Always adhere to your institution’s specific social media policy Patient Engagement

Patient Engagement Trail recruitment = Advertising Trials SWOG policy on advertising for subject recruitment NIH/NCI guidelines for social media recruitment. Trials Patient Engagement

Media Engagement Only specifically designated staff members are authorized to communicate with the media 1 Do not speak “for” SWOG without authorization 2 Be sensitive about linking to external outline content 3

If you have a red flag, contact Wendy Lawton (SWOG Communications and PR manager) SWOG Leaders cannot compel members or partners to provide access to private social media accounts SWOG Prohibits retaliation for such refusal Disclosure

For questions or concerns related to this policy, contact the SWOG Communications team: http://swog.org/Visitors/StaffDirectory.asp#operationsoffice Wendy Lawton: lawtonw@ohsu.edu For more SWOG policies: http://swog.org/Visitors/Policies.asp For Hope Foundation policies: https://thehopefoundation.org/documents/ Resources