Annual Spring Meeting April 26, 2016 7:00pm Welcome M. Everitt 7:05pm Steering Committee Update 7:15pm DCC Update D. Naftel/ S. Lenderman 7:30pm Web Based Data Entry Update 7:40pm Database Committee Update M. Richmond 7:55pm MATE Project Overview C. Almond 8:00pm Break 8:15pm Pedimacs Report D. Rosenthal 8:25pm Foundation Update R. Gajarski 8:35pm Scientific Committee Update D. Hsu 8:45pm Scientific Committee Sponsored Workshop 9:35pm Limited Data Set Request SOP 9:40pm New Business 10:00pm Adjourn

Committee Members 2016-2017 Database Committee Marc Richmond, MD Chair Nancy McDonald, NP Non Physician Rep. James Kirklin, MD UAB Representative Jacqueline Lamour Member at Large Joshua Sparks Member at Large Philip Thrush Member at Large Katie Simpson Member at Large

Status Details at Listing/Relisting/Transplant 7. Was patient in or out of hospital at time of listing (or tx or relisting? V In hospital m Out of hospital 7a. Was patient in the ICU at time of listing (or tx or relisting) m No m Yes m Unknown 7b. Did patient require continuous mechanical ventilation? 8. Does patient require continuous inotropes? V Yes 8a. Inotropes Dose m Dose Unknown m High Dose or Multiple IV m Single Low Dose 9. Has ductal dependent pulmonary or systemic circulation, with ductal patency maintained by stent of prostaglandin infusion 10. Was patient listed for ABO Incompatible 11. Was patient on a VAD or ECMO at time of listing (or tx or relisting)? m VAD m ECMO m Not on support at time of listing 12. Was patient listed for DCD (Donation after Cardiac Death) organ? m This is not current practice at our center

Data Mapping Infection Organisms

Data Mapping Infection Organisms Current: Free Text Box Coming Soon: Check all that apply Mapping of over 450 organisms entered 1993-present

Medications at Annual Follow Up Data Mapping Medications at Annual Follow Up 2010 Data Collection Form 2015 Data Collection Form

Medications at Annual Follow Up Data Mapping Medications at Annual Follow Up Current: Free Text Box Coming Soon: Check all that apply Mapping of over 2,500 medications entered 1993-present

Other, specify There are several dozen places in the database where “other, specify” is an available option. The Database Committee is beginning to review what has been entered for these “specify” fields for data cleaning. Once all fields have been reviewed, the Committee will have a quarterly review of all data entered for data cleaning and to determine if additional answer choices need to be added to questions.