Step Forward to Cure TSC
Introductions April Cooper Director of Special Events Gail Saunders and Corporate Partnerships Gail Saunders Associate Director, National Walks and Community Campaigns Shelly Meitzler National Walks Coordinator
total revenue is trending up. The good news is… total revenue is trending up.
special events revenue is trending down. The bad news… special events revenue is trending down.
Walk Trend w/o Sponsorship Walk Revenue Trends Total Walk Revenue Walk Trend w/o Sponsorship 2017 has 32 walks budgeted / scheduled across the country 2017 walk revenue is 23% of the overall TS Alliance revenue 2017 budget is $1,085,000, a 3% increase over 2016 actuals 2015 and 2016 actuals vs. budget averaged -5% below budget 2017 national sponsorships are already -$50,000 below budget
What Is the TS Alliance Doing to Help? Created a Specialized Team to Work Closer with You April, Gail and Shelly We Listened to You and Made Improvements Website Rewards Programs Corporate Team/Volunteer Partnership Program Lids Foundation CVS / Caremark Actively Seeking Others The TS Alliance believes that by using a multi-pronged approach that includes efforts directed at both research for a cure as well as support and education for the TSC community, it will maximize its impact and improve the lives of those affected with TSC. This includes: Focusing on targeted research to understand course of the disease to identify new treatments and a cure Altering the course of the disease through prenatal diagnosis and preventative treatment to improve the quality of life of those with TSC and to enable them to live as independently as possible Educating medical professionals to achieve faster diagnosis and better treatment aligned with consensus guidelines Community building to empower those living with and caring for those with TSC Strategies: Accelerate Research Grow participation in the TSC Natural History Database, enabling greater understanding of the course of the disease Distribute research funding for basic biology studies, development of new therapeutics Impact: As a result of expanding access to quality clinical care for TSC, improve the clinical outcomes and quality of life of individuals affected by TSC. As a result of investing directly in TSC research and in infrastructure to support TSC research, identify treatments that can improve the clinical outcomes and disease burden of individuals affected by TSC. Support and Empower Constituents Identify more individuals and families affected by TSC Attract new volunteers via appeal to a broad range of demographic segments for delivery of programs Increase peer-to-peer support from ARCs, Clinic Ambassadors, Dependent Adult Transition Resource Coordinators and CA meetings and gatherings from 2,200 to 4,400 by 2018, facilitated by online presence Impact: As a result of providing educational, peer and social support, improve the cognitive outcomes and quality of life of individuals affected by TSC and their family members.
Mark Your Calendar What’s happening at the TS Alliance in March and April March on Capitol Hill, March 1 Sound Bites, March 1 Team TSC (Train – Sweat – Conquer) Endurance program, launches March 2 with the New York City Marathon Comedy for a Cure, April 2 Step Forward to Cure TSC walks kick off the season on April 22: Alabama, Tampa, FL and Arizona Upcoming Webinars March 15 and March 29 Team and Volunteer Recruitment, Plus Event Management in Luminate Networking Discussion April 12 Working with your Sponsors and Promoting your Walks Invite Team Captains to Join the Conversation What other topics are important to you?
Questions?