SatNav Librarians ICML/EAHIL Dublin, June 2017 Image: CCby from http://www.midi-pile-coaching.com/

"Health librarians working collaboratively to identify trustworthy topic-specific information for both health professionals and the public“ (see: http://www.lenus.ie/hse/handle/10147/621397)

The HEAR model Rotating editor Topics identified – agreed by team Team select and review content for clinicians and patient/general public Upload content to Trello Rotating editor Promoted through Social Media Open access through National Health Repository, LENUS

“To build health literacy in Ireland by providing guidance to the general public on finding and assessing reliable online health information”

A partnership between SVHG Health Librarians, Dublin Public Librarians, & UCD School of Nursing, Midwifery and Health Systems Health Librarians: Information Quality Standards Health Professionals Electronic Health Record Patients Mind Reading Public Librarians (Dublin only for pilot): Local Gov’t support (LGMA) Relationship with Public Host website Previous experience UCD School of Nursing Midwifery & Health Systems: Community networks Research funding Ethics approval Project experience

IGNITE project partners include advocacy groups for carers, for older people, support groups for specific conditions, clinical trial participant support, Ireland East Hospital Group, SVUH. File:Fireworkphotomontage.jpg-Wikipedia

HLS-EU Consortium. "Comparative report on health literacy in eight EU member states. The European Health Literacy Project 2009–2012.“ 2nd Ed (2014). Available from: http://ec.europa.eu/chafea/documents/news/Comparative_report_on_health_literacy_in_eight_EU_member_states.pdf

No. of people reporting difficulty (%) Q1.10...judge the advantages and disadvantages of different treatment options? 56.5 53.3 51.2 45.4 39.4 31.8 30.9 30.8 42.6 Q1.11...judge when you may need to get a second opinion from another doctor? 48.6 49.6 43.0 31.9 30.8 36.4 44.0 24.1 38.6 Q1.12...judge if the information about illness in the media is reliable? 61.2 57.5 59.1 45.3 46.3 43.4 47.4 36.0 49.7 Q1.35...find out about political changes that may affect health? 61.6 71.0 60.3 44.2 49.9 43.1 55.7 40.0 53.2 Q1.28...judge if the information on health risks in the media is reliable? 49.3 47.2 54.6 40.2 35.8 36.2 44.9 27.0 42.1

“Breathing oxygen linked to staying alive!” Specifically.. “Breathing oxygen linked to staying alive!” Health in the media Conversations with health professionals Impact of health policies Images Ccby from Flickr.com & Wikimedia Commons

Survey through Dublin City Libraries Ran for two weeks Online with print option Available through English or Irish 1300 responses received

Remit from Survey 92% of respondents had looked for health information online 90% had looked up their symptoms 60% found it “easy” to find health information Taken together, these findings represent both an opportunity and a potential health threat

Activity Analysis of survey results: identify themes, compile report and organise Focus Groups Agree content for host website: to be approved by NALA (National Adult Literacy Agency) and health professionals Informed by survey results, create storyboards for online training modules for public and staff Promote awareness of HEAL amongst clinicians, public and colleagues. Identify champions to assist SVHG become a “Health Literate Organisation”. Brach C, Keller D, Hernandez LM, Baur C, Parker R, Dreyer B, Schyve P, Lemerise AJ, Schillinger D. Ten Attributes of Health Literate Health Care Organizations.

Key Messages Understand the environment and perspectives of partners and work to each other’s strengths Have a detailed business plan – approach it as if you’re going to have funding Choose champions widely and wisely Be flexible (but don’t lose sight of core purpose and values) Don’t underestimate people power!

On behalf of the HEAL team: Sheila, Anne-Marie, Marian, Eddie, Patricia, Coleesa, Eidin, Thilo, Caroline, Niamh, Gerry, Domitilla and myself

Go raibh maith agaibh (thanks!) Anne Madden Anne.madden@ucd.ie 00 353 1 221 4921 @Gobnait