Mental Health workstream Margaret Petherbridge Dee Fraser Allie Cherry

What SDS is (and what it isn’t) Personalisation ≠ Self-directed support Self- directed support ≠ Direct Payments It is based on meaningful choice and control It is a means to an end (in Scotland) It is effective (but it won’t save money) It is not a revolution (don’t panic…)

The terrain: barriers for mental health Low awareness Stigma and self- stigma Professional nervousness (process and capability) Lack of mental health stories and role models Health route (not necessarily social work) Small support packages and use of non- SDS services e.g. drop-in, crisis centres. Involuntary admission= disempowering Experience of certain mental health problems- feels like control isn’t possible.

The map: what we did Initial meeting Really small survey (n=4) Bring Your Own Evidence (BYOE) session NHS Lothian literature review

Bring Your Own Evidence (BYOE) Something that convinces you about SDS Mosaic not hierarchy 9 participants

Being convinced- “It’s not logic, captain…” Multiple influences on what we ‘count’ as evidence What my boss wants…who I’m talking to…what I read last…the media…how I feel…what I know…my background…my experiences

The evidence we talked about Lived experience (service user and carer) Falkirk Mental Health Respite Vouchers Pilot NHS Lothian SDS Pilot IBSEN study (mental health data only) NHS Lothian Literature review “Self- directed support A review of the barriers and facilitators” (2011) Scottish Government Potential pieces of work (SRN, NHS Highland)

Method: Exploring the evidence What stood out? What happened? Who was involved? What made it work/not work? What questions did it not answer?

Method: thinking about quality Does it convince me? Based on the SCIE/Keele Protocol Evidence shopping ‘Yes Minister’ syndrome

What we found… Create accessible information about mental health and SDS. Don’t make stigma based assumptions about people’s ability to cope and thrive with their own budget. Develop strong stories of mental health recovery and SDS.

What we found(2) Need know more about what happens in the long term. Need to hear the individual’s whole story from start to finish. What worked and what didn’t. Larger groups of people stories from people who know’ ‘stories that let us see SDS is possible’

What we would do differently Separate sessions Raise awareness Collect experience Analyse evidence More time! Clearer briefing for participants.

Expedition: Where to go next Planned Pilotlight Mental Health Foundation research Potential SDS recovery stories WRAP and recovery budgets Using BYOE for project development

contact Dee Fraser Dee.fraser@ccpscotland.org www.ccpscotland.org/providers_and_personalisation (0131) 475 2676 P&P is a four year policy and practice change programme seeking to increase the voluntary sector provider voice in SDS policy and support providers to share and develop best practice in SDS. P&P is fully funded by the Scottish Government and hosted by CCPS.