Better Lives. Together. The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson’s community. We are: Patient and community centered Evidence-based Driving the field forward through collaboration Focusing on maximum impact, scalability and sustainability

Parkinson’s Advocates in Research Program Parkinson’s Foundation Research Advocates are people with Parkinson’s and care partners who have been trained in both the clinical research process and how to collaborate with researchers in industry, academic centers and government to: Prioritize Research + Influence Stakeholders Improve Studies = FASTER RECRUITMENT

Parkinson’s Foundation Patient Panel for Pfizer 7 Research Advocates in a one-day panel 8 Parkinson’s Foundation generated recommendations 3 clinical trial modifications Identified the most impactful non-motor symptoms (secondary outcomes) for people living with Parkinson’s Altered PRO tools to accurately capture the lived PD experience Clarified how people with Parkinson’s are defining these symptoms

Best Practices Start conversations early in the process including with legal teams Set expectations Identify the right participants Co-create the panel Share information bi-directionally Be accountable and transparent Keep the relationship going