Development and validation of a self-report symptom inventory to assess the severity of oral-pharyngeal dysphagia  Karen L. Wallace, Sue Middleton, Ian.

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Development and validation of a self-report symptom inventory to assess the severity of oral-pharyngeal dysphagia  Karen L. Wallace, Sue Middleton, Ian J. Cook  Gastroenterology  Volume 118, Issue 4, Pages 678-687 (April 2000) DOI: 10.1016/S0016-5085(00)70137-5 Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 1 Patient compliance with question completion: proportion of patients who failed to complete each question. Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 2 Group mean total score in patients with neuromyogenic dysphagia is highly significantly greater than that of controls without dysphagia (P < 0.0001). Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 3 Group mean delta scores and 95% CIs for each of the 19 questions derived by subtracting retest score from baseline score. No significant change over time was noted. The mean delta values for raw scores ranged from 0 to 9.7, and mean change in total score was −11.6 (95% CI, −65.4% to 42.3%). With the exception of Q12 and Q13, the maximum possible score for each question is 100. Average change in normalized total score was −0.5% (95% CI, −9.2% to 8.2%). Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 4 Experts' opinion as to the relevance of each individual question to the assessment of severity of oral-pharyngeal dysphagia to estimate the face validity of the inventory. Relevance is rated low (■), moderate (▨), or high (□). Sixteen of 19 (84%) questions rated were considered to have moderate or high relevance. Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 5 Correlation between global assessment score and the total score of the prototype inventory. The highly significant correlation coefficient (r = 0.69; P < 0.0001) is consistent with construct validity. Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions

Fig. 6 Changes in (A) total inventory score and (B) global assessment score after surgery in 11 patients with Zenker's diverticulum. Total inventory score decreased by a mean of 70% after surgery (P < 0.0001). A concurrent decrease in mean global assessment score of 89% was noted (P < 0.0001). Gastroenterology 2000 118, 678-687DOI: (10.1016/S0016-5085(00)70137-5) Copyright © 2000 American Gastroenterological Association Terms and Conditions