Health Care and Research

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Presentation transcript:

Health Care and Research Simon Travis, Oxford UK, President of ECCO, EFCCA meeting E Parliament, 17 October 2013

ECCO Educational Workshops – where we have been so far…

Cooperation between ECCO and its partners Guidelines 2013/2014: ESGAR – Imaging ESP – Histopathology ESPGHAN – Paediatrics (UC & CD) ESCP – Surgery (UC) ECCO-EFCCA Join the Fight! Research EHFG ECCO-UEG cooperation (EMA) Concept paper on the revision of the guideline on the development of medicinal products for the treatment of Ulcerative Colitis (CHMP/EWP/18463/2006) ESGE Symposium Quality in Endoscopy: IBD & Small Bowel Disease Budapest, Nov. 15-16, 2013 AOCC Inaugural meeting Jun 14-15 ECCO@WCOG Symposium on colorectal disease Shanghai, Sep 21-24, 2013 ECCO-CIMF Summer School Guangzhou, China, April 25-28, 2013 ECCO Partners

Health care & Research IBD Lifelong diseases 3m in the EU, >€5bn/y direct healthcare costs National & regional disparities in diagnosis, access, disability 2013 survey of 5003 patients from 6 countries >25% waited >1y for diagnosis unchanged over 20y SpNurse access 8% FR, 52% UK Patient association info 21% SP, 39% UK Variation in multidisciplinary teams Change is achievable Differences in medical care affect HC utilisation ED visits etc) Burisch et al J Crohns Colitis 2013: Burden of IBD in Europe Lakatos et al J Crohns Colitis 2014: Disparities in IBD care in Europe

Health care & Research Research Learn from cardiologists: investigate what PRECEDES disease Focus on the microbiome Explore the environment through the exposome QoL Patients are part of the solution Real time data collection for a fluctuating condition Manage the manageable EC Health Strategy 2014-2020 ‘Chronic disease’ to include inflammatory disease Respond to economics: reduce expensive emergencies Involve patients: facilitate web-based models of care Organisation of care > expensive drugs for a minority