NUTRITION AS IT RELATES TO CHILDREN WITH SPECIAL HEALTHCARE NEEDS

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Presentation transcript:

NUTRITION AS IT RELATES TO CHILDREN WITH SPECIAL HEALTHCARE NEEDS Chris Linn, Executive Director

PURPOSE OF TODAY Understand the complexity of feeding and swallowing struggles and the importance of early identification Family story Discuss the importance of team collaboration in order to best support the infant/child/family Infant and Child Feeding Questionnaire©

Statistics Feeding problems & children at risk Over 200 diagnosis are associated with feeding struggles: Prematurity and extended NICU stays, congenital heart disease, respiratory and airway diseases, autism, cerebral palsy, craniofacial disorders, genetic disorders, etc.

FAMILY STORY - EMILIE Born 3/15/03 at 25 weeks 3 days gestation 1.9 oz Discharged on oral feeds, supplemental oxygen and apnea monitor At home feeds - arching, crying, vomiting, turning away from the bottle, trouble breathing, lips turning slightly blue Diagnosed with reflux, silent aspiration and mild cerebral palsy

NICU STATISTICS Many NICU graduates go home with special healthcare needs Why do over 50% of preemie parents report poor feedings by 6 months of age? Why do 20% of preterm infants meet the criteria for “failure-to-thrive” by 8 months adjusted age? Kirkby, et al., 2007; Hawdon, et al, 2000; Cerro, et al., 2002; Kelleher, et al., 1993

Child Medical Cognitive Motor Skills Sensory Social & Emotional communications Food Choices & Nutrition Sensory Motor Skills Social & Emotional Medical Environment

COORDINATION OF CARE Multidisciplinary Core Feeding Team: Parent/Caregiver Physician Psychologist Speech & Language Pathologist Occupational Therapist Dietitian Nurse Other Important Sub Specialists: Gastroenterologist Ear Nose Throat Pulmonologist Cardiologist Allergist Etc.

INFANT AND CHILD FEEDING QUESTIONNAIRE© feedingmatters.org/questionnaire Authored by nationally-recognized feeding experts Aimed to help improve early identification Questions are age-specific based upon the birth date of the child and adjusted if the child was born prematurely Questionnaires available through 36 months. After 36 months, all feeding skills should be mature Red Flags indicate there may be a potential feeding struggle

Questions?