Sunday, November 12, 2017 Anaheim, California Annual Fall Meeting Sunday, November 12, 2017 Anaheim, California

Agenda 7:30pm Welcome M. Everitt/R. Chinnock/J. Alejos 7:40pm Steering Committee Update Melanie Everitt 7:45pm DCC Update James Kirklin 8:00pm Database Committee Report Marc Richmond 8:15pm Foundation Update Craig Collum 8:30pm DISCUSSION Research Project Timeline of Submission Progression of Elections 8:55pm Pedimacs Update Betsy Blume 9:10pm Scientific Committee Report Anne Dipchand 9:20pm New Officers and New Business 9:30pm Adjourn

Thank you to our sponsors:

Thank you to our sponsors:

Thank you to our sponsors: Dr. Richard Chinnock

Welcome to PHTS from LLUCH!

Heart Transplantation at LLUCH

LLUCH Peds Heart Tx Milestones 1984 – Baby Fae 1985 – Dr. Bailey performs first successful newborn heart transplant Just turned 32 yo, on his first heart First infant heart transplant Canada, Japan, Finland, Italy, Spain

LLUCH Peds Heart Tx Survival

Transplant Community Connections Lori West Norihide Fukushima Miki Asano Motohiro Kawauchi Beatrice Dionigi Alexandra Fuchs Francesco Parisi Patrizia D’Argenio TP Singh Luca Vricella Robert Morrow Hermann Reichenspurner Francois Bouchart David Campbell Mario Chiavarelli Luis Gureta Et al!!

Thanks to the Team, Pts and Families Thoracic Surgery Leonard Bailey, MD Anees Razzouk, MD Tim Martens, MD Cardiology Ranae Larsen, MD Mike Kuhn, MD Neda Mulla, MD Ravi Mandapati, MD Brent Gordon, MD Donna Goff, MD Jennifer Lo, MD Jade Tran, MD Transplant Cardiologist/Physician Matt Bock, MD Tami Shankel, MD Transplant Coordinators Sharon Robie, RN, MBA Kay Ogata, RN, MSN Transplant Pharmacist Robert Tan, Pharm.D Database Coordinator James Fitts, MBA Social Worker Mimi Miller, MSW Transplant Dietician Merilee Hadley-Scofield, RD

Thank you to our sponsors: Dr. Juan Carlos Alejos

UCLA Pediatric Heart Transplant Team CT Surgeons Pediatric Cardiologists Nurse Practitioner & Nurse Coordinators Social Worker, Psychologists, & Nutritionist

Program Highlights: Inception: 1984 Transplants to date: 396 Transition Program Team Psychologist

Le Bonheur Children’s Hospital Welcome New Centers! Le Bonheur Children’s Hospital Jeffrey Towbin, MD Umar Boston, MD Jason Goldberg, MD Elaine Turcotte, BS, CCRP Jenny Strelsin, PNP-AC

Welcome Enrolling Centers! University of California, San Francisco, Benioff Children’s Dr. Jeffrey Gossett Mayo Clinic, Rochester Dr. Jonathan Johnson University of Mississippi Medical Center Dr. Avichal Aggarwal Nicklaus Children’s Hospital, Miami Dr. Kristine Guleserian The Royal Children’s Hospital Melbourne Dr. Robert Weintraub Hospitals not included: Japan, New Orleans, Maryland