Specialised Services: harm and mortality reduction Tuesday 11 May 2010 Specialised Services: harm and mortality reduction Insert name of presentation on Master Slide

Specialised Services Aim Drivers Interventions Specialised Services Reduce Harm Improve Quality of Life and Survival Reduce Mortality Partnership with: All LHBs, GPs, LAs, Schools, Fire Service Sarcomas Burn Injuries Cystic Fibrosis Head Injuries: neurosurgery Pulmonary hypertension Blood and marrow Transplants Prevention and Delayed Referrals Clinical and Public awareness Pathways Networks that work Access to timely interventions and treatment Avoidable Mortality and Harm Prevention and Care Communication / Feedback Designation of Services Standards National databases QA Data Quality Applied Research Epidemiology / Outcomes Specialised Services

Potential 10 to 20 lives saved pa and 100 harm avoidance Soft Tissue Sarcomas Aim Drivers Interventions Tests of Change Reduced delays / Improved Services Sarcoma Standards Implementation Late investigation of soft tissue lumps and swellings Designation /funding of Specialist sarcoma teams Soft Tissue Sarcomas Potential 10 to 20 lives saved pa and 100 harm avoidance Avoidance of local surgery Local surgery biopsy/cutting into sarcoma Early referral for investigation Outcome monitoring: standards and audit via database Pathway to specialised pathology imaging and surgical assessment Unclear referral pathways Specialised Services

Burn Injury Prevention and Management Aim Drivers Interventions Tests of Change Prevention Strategy LHBs, LAs, Fire Service, Schools Reduction in severity and numbers Accidents with scalds and burns needing surgery Burn Standards :prevention and clinical management Burn Injury database to target at risk groups BURN INJURIES Potential 5 to 10 Lives saved pa and 1000 harm avoidance Trauma Outcome research link to Public Education and Home/Industrial Safety Children, Elderly, Mentally Ill Injury Care bundles : wound management and Critical Care Delayed transfers Post Burn reconstruction and rehabilitation Specialised Services

Potential 5 Lives extended pa and 50-100 harm avoidance Cystic Fibrosis Aim Drivers Interventions Tests of Change Cystic Fibrosis National Standards: Implementation Increased length / QOL Maintaining lung function- preventing decline Identification via newborn screening: early planned specialised care CYSTIC FIBROSIS Potential 5 Lives extended pa and 50-100 harm avoidance Care bundles: active surveillance: growth, infections, nutrition, chest,DM,Osteoporosis Specialist care/complic ations Network of outreach specialist services to deliver care close to home CF Trust :use Registry to target/ track clinical progress and effective interventions in Wales Differences in outcomes of care Continuous patient led Quality assessment of CF management / QOL Specialised Services