Achieving World-Class Cancer Outcomes: Taking the strategy forward May 2016 “People affected by cancer – those living with it and those supporting relatives or friends with a diagnosis – are the driving force for change. We know our survival rates are not good enough in this country, we know we can do more to improve patients’ experiences and long-term quality of life, and we know that there is unwarranted variation in outcomes between different parts of the country and for those from different backgrounds. In July, the independent Cancer Taskforce published their strategy setting out how we in England could achieve the very best cancer outcomes by 2020. It was universally welcomed and backed by the health Arms-Length Bodies, the Government and the wider health community. “

The strategy is comprehensive in showing how we can achieve: •fewer people getting preventable cancers; •more people surviving for longer after a diagnosis, with 57% of patients surviving ten years or more; •more people having a positive experience of care and support; and, •more people having a better long-term quality of life.

In these straitened financial times, we must make the most of opportunities to do things more efficiently, particularly where it also benefits patients. For example, investing in online access to test results and other communications can not only improve patients’ experiences of care, but can also save money by removing the need for unnecessary repeat tests or appointments. As we progress with implementation of the strategy, our plans will continue to be shaped by engagement with patients, carers, families, and clinicians.

Cally Palmer, National Cancer Director…. This plan is structured according to the six strategic priorities from the Cancer Taskforce report, which have determined the six key workstreams for the implementation programme: (Includes) Establish patient experience on a par with clinical effectiveness and safety

GUIDANCE TO PARTICIPATION Involve patients and public in a meaningful way…. To improve services Legal duty to involve…. (Health and Social Care Act 2012) BUT Should become a natural part of the way we work….effective participation!

The NHS Constitution enshrines public ownership of the NHS as a fundamental value The NHS is accountable to the public, communities and patients that it serves Lessons from when we are not listening: Mid Staffs- Francis Inquiry Personal benefits of participation and involvement: increased knowledge of services; ability to self manage; increased confidence

NHS England 10 Principles of Participation: Reach out to people rather than expecting them to come to you and ask them how they want to be involved, avoiding assumptions. Promote equality and diversity and encourage and respect different beliefs and opinions. Proactively seek participation from people who experience health inequalities and poor health outcomes. Value people’s lived experience and use all the strengths and talents that people bring to the table, working towards shared goals and aiming for constructive and productive conversations. Provide clear and easy to understand information and seek to facilitate involvement by all, recognising that everyone has different needs. This includes working with advocacy services and other partners where necessary.

10 Principles….. Take time to plan and budget for participation and start involving people as early as possible. Be open, honest and transparent in the way you work; tell people about the evidence base for decisions, and be clear about resource limitations and other relevant constraints. Where information has to be kept confidential, explain why. Invest in partnerships, have an ongoing dialogue and avoid tokenism; provide information, support, training and the right kind of leadership so everyone can work, learn and improve together. Review experience (positive and negative) and learn from it to continuously improve how people are involved. Recognise, record and celebrate people’s contributions and give feedback on the results of involvement: show people how they are valued

Consider…