Support Model as of 9/27/17 Partners: Provide A Support: To:

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Presentation transcript:

Support Model as of 9/27/17 Partners: Provide A Support: To: Resulting in: Regional: Family Advocacy Orgs, Cultural Orgs, Weitzman Institute, Northeast Telehealth Resource Center, Regional Health Equity Council, VMP Genetics, Genetic Specialists, Genetic Counseling Training Programs, Public Health, Other Community Orgs National: HRSA, NCC, Genetic Alliance, Family Orgs, Western States, Heartland Mgmt: UNH, Women & Infants Hospital RI Educational Supports Web based info and resource map Tailored educational resources for health and non-health providers 18 session complex pediatric ECHO Families, Primary Care Providers (Docs, Nurse Practitioners, Physician Assistants), Non-Health Providers (Community Health Workers, Home Visitors, Family Voices Staff, etc.) Short Term Changes, Increase in # of individuals, families, and providers accessing genetics information # of providers receiving targeted training and technical support concerning genetics # of underserved patients with a genetic condition receiving enhanced care # of providers trained in utilization of telehealth resources Intermediate Term Changes Improved coordination of services Patient care that is informed by genetics information A strengthened genetics network which facilitates improvements in care Long Term Changes Improved health of individuals living with a genetic condition Technical Support Adapting to and utilizing telehealth resources Genetic Counselors, Genetic Counseling Students, Primary Care Providers Clinical Support Genetic specialist clinical consultations to primary care providers Primary Care Providers