Arthritis: Rheum & Osteo and the family of arthritis disease states Brendan Demmy, Development Manager February 23, 2018

The Arthritis Foundation focuses on breaking down barriers to care and advancing scientific discoveries. We also connect people with arthritis to tools, resources and a wider community of support.

Arthritis 101 Osteoarthritis Rheumatoid arthritis Lupus, psoriatic, ankylosing spondylitis Juvenile arthritis Nick Turkas: 100 types Review of the most common forms, physiology

Rheumatoid Arthritis Autoimmune disease Body’s immune system is mistakenly attacking the joints Causes inflammation in the joints, tendons, and muscles Fatigue, loss of appetite also common. No cure Early, aggressive treatment is a critical first step for maintaining quality of life.

Osteoarthritis “Wear and tear” arthritis Most common chronic condition of the joints. Occurs when the cartilage or “cushion” between joints break down No specific cause known Many factors attributed, however Formerly understood to NOT be an inflammatory disease: this is FALSE!

What else falls in the arthritis family? Lupus Gout Fibromyalgia Osteoporosis Juvenile Arthritis Juvenile Idiopathic Arthritis

Juvenile Arthritis (JA) – wait, kids get arthritis too? Arthritis can affect people of ALL ages JA is an umbrella term for the many types of autoimmune / inflammatory conditions. Types: Juvenile Idiopathic Arthritis Juvenile Lupus Juvenile dermatomyositis. Over 300,000 kids across US have arthritis.

KidsGetArthritisToo.org Resources Medical care Parents stories JA Conferences JA camps & family day events School issues & educational rights toolkit Transitions information Research Educational Webinars Liz Atchison: In addition to arthritis.org, we host a JA specific website – Kidsgetarthritistoo.org which includes resources such as {READ SLIDE}

Tools & Resources Tools & Resources Now that we have a better understanding of how arthritis affects the body, let’s focus on the tools and resources you can use to take control. Take away: Don’t settle! You don’t have to give up your dreams! Here are concrete, specific things you can do to better understand and improve your health. Moreover, you’ll be equipped with meaningful information to share with your healthcare provider that can improve our communication and partnership. Tools & Resources

Arthritis.org Resources The next set of resources can all be found online – www.arthritis.org It’s all free and available 24/7 Look under “Living With Arthritis” on the top menu, then select “Tools & Resources” from the drop-down menu.

Click the Living with Arthritis tab near the top of the screen Click the Living with Arthritis tab near the top of the screen. Then choose Tools and Resources. Let’s go through Digital better living toolkit Your Exercise Solution Arthritis Resource Finder

Digital Better Living Toolkit

First, you can find links to resources about RA, PsA and managing pain First, you can find links to resources about RA, PsA and managing pain. You can find information about your arthritis and ways to manage pain.

In order for you to best understand how to manage your arthritis, you need to set a base line. This tracker is based on the RAPID-3, a proven tool widely recognized by rheumatologists to track RA and its symptoms. That’s important because the results will be unique to you, but for me as your rheumatologist, it provides specific insight into your journey with RA.

Your Exercise Solution The tracker tells you (and me) the detailed information about your arthritis – in plain language – and takes just a few minutes each week.

Arthritis Resource Finder The tracker tells you (and me) the detailed information about your arthritis – in plain language – and takes just a few minutes each week.

Person-to-person Support 1-844-571-HELP Two, full-time licensed, clinical social workers Offers personalized support More than 2,000 calls Most common calls information about arthritis and its treatment, financial assistance for medication CDC grant funded The tracker tells you (and me) the detailed information about your arthritis – in plain language – and takes just a few minutes each week.

Resources For more information: Talk to your rheumatologist Visit www.arthritis.org Local AF market office The tracker tells you (and me) the detailed information about your arthritis – in plain language – and takes just a few minutes each week.