CFRI: Your Partner in Living CFRI Mission Statement CFRI exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease. Siri Vaeth Dunn, MSW Programs & Outreach Manager Research for Living ~ Partners for Life

CFRI’s Programs Include: Online MBSR Class CF Caregivers Support Groups Embrace Mothers Retreat Counseling Support CF Summer Retreat National CF Family Education Conference Many Voices ~ One Voice CF Advocacy & Awareness Campaign Educational Resources CF Research Funding Research for Living ~ Partners for Life

“Living Mindfully with CF” Mindfulness Based Stress Reduction Class Online “Living Mindfully with CF” Mindfulness Based Stress Reduction Class Offered FREE to national CF community; Taught by Julie Desch, MD; Open to adults with CF & family; Six weekly classes, and “online retreat;” Large & small group discussion, yoga, and meditation. Research for Living ~ Partners for Life

CF Caregivers Support Groups: Third Tuesday of Every Month You are not alone. - Parents of Children with CF: 5:00 pm - Parents/Partners of Adults with CF: 6:00 pm - Call in or Attend in Person - Facilitated by Meg Dvorak, LCSW CF Social Worker at Stanford Research for Living ~ Partners for Life

Research for Living ~ Partners for Life Embrace Retreat For Mothers of Children & Adults with CF May 4 – May 6, 2018 Vallombrosa Center, Menlo Park Research for Living ~ Partners for Life

Individual Counseling Support Research for Living ~ Partners for Life Individual Counseling Support CFRI’s CF Quality of Life Program A Living Legacy of Peter & Kathy Judge CFRI will cover up to $120 per session for eight sessions of therapy with the licensed therapist or clinical psychologist of your choice. Available to individuals with CF, their parents, siblings, spouses/partners. Research for Living ~ Partners for Life

Research for Living ~ Partners for Life CFRI’s 2018 CF Summer Retreat August 15 – August 21, 2018 Vallombrosa Retreat Center Menlo Park Research for Living ~ Partners for Life

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Many Voices ~ One Voice CF Awareness and Advocacy Campaign Together we are a strong community with the ability to impact public policy related to healthcare protections and access to quality, affordable healthcare and therapies. • Action Alerts • CF Awareness Events – CA and Beyond • Externally-Led FDA Event • Rare Disease Partnerships Join Us! cfri@cfri.org

CFRI FUNDED RESEARCH CFRI’s supports researchers at academic and medical institutions across the U.S. who bring new perspectives to the study of CF. CFRI funds projects that are original, probing, and/or pioneer a new approach to a therapy or cure for cystic fibrosis.

Research for Living ~ Partners for Life Thank you! For more information about these programs, contact cfri@cfri.org 650.665.7576 Join us! Programs discussed today have been generously underwritten by: Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, Novartis, Boomer Esiason Foundation, and the Global Genes Foundation