Pedimacs 2016.

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Presentation transcript:

Pedimacs 2016

Organizational Structure Intermacs: NIH Industry Hospitals Medamacs Imacs Pedimacs

Pedimacs: Established September 2012

Enrollment Summary

Case Volumes

Academic Productivity Manuscripts (accepted for publication in May issue of JHLT) Outcomes of Children Implanted with Ventricular Assist Devices in the United States: First analysis of the Pediatric Interagency Registry for Mechanical Circulatory Support Outcomes of Pediatric Patients Supported with Continuous-Flow Ventricular Assist Devices: A report from the Pediatric Interagency Registry for Mechanical Circulatory Support Adverse Events in Children Implanted with Ventricular Assist Devices in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support 36 Authors from 14 institutions

Abstracts at ISHLT Infectious Complications of Ventricular Assist Device Use in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) Utilization and Outcomes of Temporary Ventricular Assist Devices in Children : A Report from the Pediatric Interagency Registry for Mechanical Circulatory Support (PEDIMACS) Utilization and Outcomes of Ventricular Assist Device Support in the Adult Congenital Heart Disease: An Analysis of the Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS)

Work In Progress Changes in renal function following left ventricular assist device placement in pediatric patients: A Pedimacs Analysis Outcomes of infections in children and young adults with ventricular assist devices: an analysis of the PEDIMACS/INTERMACS database Proposal for Linkage of the Pedimacs and PHIS databases to evaluate: Resource Utilization in Pediatric Patients Supported with Ventricular Assist Devices

Additional Pedimacs Output Quarterly Public Report (Federal Partners Report) Center Data Quality Reports Center Quality Assurance Reports

Pedimacs Proposals Submission process via Intermacs website http://www.uab.edu/medicine/intermacs/research-proposals/pedimacs-research-proposals Submit proposal for analysis by Intermacs staff Deadlines twice yearly Review by DAAP 1 abstract for AHA 2 abstracts for ISHLT Submit proposal for analysis by researcher No deadlines Dataset provided

Pedimacs DAAP Committee Co-Chairs Frank Pagani David Rosenthal Members Ryan Cantor Betsy Blume Jim Kirklin Joe Rossano Susan Meyers Aamir Jeewa Jeanne Love Robert Jaquiss Craig Collum Sabrina Law David Morales Christina Vanderpluym Jeff Gossett

The Year Ahead (or how to get involved) Review of Data Fields Evaluation of QOL data and how to improve this section of Pedimacs Linkages PHIS PHTS Intermacs