3 June, 2014 Matthew Israelson Data Development Manager Overcoming Challenges in Global Health Data to Empower Research: Collection, Attribution, and Dissemination The Global Health Data Exchange (GHDx) 3 June, 2014 Matthew Israelson Data Development Manager

Agenda Collection Attribution Dissemination Acquisition Storage Cataloging Enabling Research Dissemination Publishing Visualizations

About IHME The Institute for Health Metrics and Evaluation (IHME) July 2007: Founding of IHME with support from Bill & Melinda Gates Foundation and the state of Washington March 2011: Launch of the Global Health Data Exchange (GHDx) at the Global Health Metrics and Evaluation conference December 2012: The Global Burden of Diseases, Injuries, and Risk Factors Study 2010 (GBD 2010) published in The Lancet June 2014: First yearly update of GBD published in The Lancet www.healthmetricsandevaluation.org

About GHDx Original Charter for the Global Health Data Exchange (GHDx) Catalog the world’s health and demographic data Share data where we have permission to As much as possible, tell people where to find data Exponential growth in order to accommodate the research Includes over 30,000 data sources Search, metatags, detailed citations Growth based on researcher needs ghdx.healthmetricsandevaluation.org

Acquisition Growth of Records Health Surveys Census Records Surveillance Systems Disease Registries Vital Registration Hospital Records Financial Records Literature

Storage Capacity of 250 Terabytes Access only for IHME staff Limited Use Access Restricted to named researchers Controlled or sensitive datasets Growth from 1.5 Terabytes to over 250 Terabytes in dozens of servers.

Cataloging Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Cataloging Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Cataloging Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Enabling Research GHDx is a central component to IHME’s Infrastructure Website Catalog NID RSS Encyclopedia Wiki Discuss the Roles: Data Team, IT, Data Analysts Tenants of the GHDx Infrastructure Centralization: we want to consolidate all data prep in a standardized directory that’s easy to navigate and understand for current and future GBD members Reproducibility: we want to make sure changes to the data are tracked in a way that can be reproduced; code should be used to make changes to raw data whenever possible Efficiency: we need to be able to efficiently re-prep input data as needed and propagate throughout the results Flexibility: we want to maximize flexibility in prepping data while still maintaining a standardized infrastructure Continuity: we want to design a permanent structure that will be used for future iterations of GBD, not just this update cycle Dimensions Hierarchies Risks Causes Locations Covatiates Demographics Age Groups Years Sex Etc. Databases COD Covariates Dismod Epi Federated GBD Vix GHDx Mortality Ticketing

COOPER Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Publications Research Articles Policy Reports Brochures Country Profiles Infographics Newsletters Presentations Videos Visualizations Create a list of major publications – article publications, website, visuals… 112 Publications (Research Articles) as of 7 April.

Visualization Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Visualization Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Visualization Each record in the GHDx is discoverable through a variety of methods. Just one is not enough for the a large and changing research team with a wide range in experience with user interfaces and databases.

Research Tool & Catalog Complexities Need for an extensive IT Infrastructure Integrating researchers and staff Quantity of data sources and records Current State Expansive, searchable health data catalog Tool development that empowers research Growth based upon new avenues of research