Mary Alice Nading, MD, Julien J. Lahmar, John W

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Presentation transcript:

A ski and adventure camp for young patients with severe forms of epidermolysis bullosa Mary Alice Nading, MD, Julien J. Lahmar, John W. Frew, Nicholas Ghionis, Martin Hanley, Anna Kemble Welch, BArch, Dedee F. Murrell, MD Journal of the American Academy of Dermatology Volume 61, Issue 3, Pages 508-511 (September 2009) DOI: 10.1016/j.jaad.2008.12.004 Copyright © 2008 American Academy of Dermatology, Inc. Terms and Conditions

Fig 1 Wheelchair-bound camper with recessive dystrophic epidermolysis bullosa severe generalized type in sit-ski with instructor. Journal of the American Academy of Dermatology 2009 61, 508-511DOI: (10.1016/j.jaad.2008.12.004) Copyright © 2008 American Academy of Dermatology, Inc. Terms and Conditions

Fig 2 Camper with recessive dystrophic epidermolysis bullosa severe generalized type and ski instructor demonstrating sit-ski in action with volunteers close behind for safety (A), on chairlift with helper (B), and being pushed off chairlift at top (C). Journal of the American Academy of Dermatology 2009 61, 508-511DOI: (10.1016/j.jaad.2008.12.004) Copyright © 2008 American Academy of Dermatology, Inc. Terms and Conditions

Fig 3 Campers and volunteers on whitewater rafting excursion. Camper with recessive dystrophic epidermolysis bullosa (EB) severe generalized type (rear to right) is difficult to distinguish from rest and is enjoying himself, as is camper with EB simplex on left just behind Anna Kemble Welch, who is paddling (front left). Journal of the American Academy of Dermatology 2009 61, 508-511DOI: (10.1016/j.jaad.2008.12.004) Copyright © 2008 American Academy of Dermatology, Inc. Terms and Conditions

Fig 4 Newfound friends at 2007 New Zealand epidermolysis bullosa (EB) winter camp at Mount Ruapehu in New Zealand. Left to right, back row: Ski instructor, camp director Anna Kemble Welch, nurse Jose Duipmans, camper with recessive dystrophic EB (RDEB)-severe generalized type, medical director Dedee F. Murrell, camp volunteer Martin Hanley, camper with RDEB sev gen, medical student volunteer Julien Lahmar, camper with RDEB-generalized–other. Left to right, front row: volunteer helper, medical student volunteer John Frew, camper with RDEB-severe generalized type, and camper with EB simplex. Journal of the American Academy of Dermatology 2009 61, 508-511DOI: (10.1016/j.jaad.2008.12.004) Copyright © 2008 American Academy of Dermatology, Inc. Terms and Conditions