Planning for home: Family-arranged residences Rosemary Alexander, Pathways to Adulthood Program Texas Parent to Parent, txp2p.org Rosemary.alexander@txp2p.org

Questions to think about What’s your timeline? Does my child want to live with family, alone, with 1-2 people, or in a group setting? What supports does she need? What funding sources are available and what are their requirements? How much time, energy and assets do I have available for a home set-up? 2

Option: State-funded homes HCS Group Homes (4 residents max), based on having HCS Medicaid Waiver, long wait ICF/IDD group homes (6 or more), Intermediate Care Facility for people with Intellectual and Developmental Disabilities, access LIDDA Residences vary widely, visit and ask questions One key question: what do the residents do during the day? 09/09/15 3 3

Option: Privately funded communities Examples-- Down Home Ranch near Austin Marbridge Ranch near Austin Brookwood Community near Houston Cornerstone Ranch in McKinney 2-3 in a small house to dorm style living Medicaid waivers don't work here: use private pay, SSI, earned income, special needs trust 4

Option: Parent-arranged residences 1-3 people living together with supports as needed In a place separate from family Initiated by family or individual Operated by family or individual Set up individually or with other families 09/09/15 5 5

How does it compare with other residential choices? Advantages: gives resident and family greater control over the environment and more individuality Disadvantages: higher overhead-- can be a big commitment of time, energy and $; if several residents live together, family must share decision making with others 09/09/15 6 6

Options for parent-arranged residence Redesign your home, lot, neighborhood: Partitioned area for adult in your home Home in your backyard or garage apartment (check zoning) Adult inherits parent home 09/09/15 7 7

Options for parent-arranged residence Set up another household: Adult lives with another family or care-giver in the caregiver’s home (HCS model) Adult lives in apartment, condo or house (family rents or buys) for 1 to 3 residents; supports—live-in or come and go. 09/09/15 8 8

Family consortium Small group of parents pool resources to manage a home for their children; group must be willing to work closely together May buy or rent a house/condo/apartment Must manage support services together May create more independence and lower costs through technology Well-documented at leapinfo.org---> look for The ILLP (The Innovative Independent Living Project)The Innovative Independent Living 9

Tips for setting up parent-arranged residence Learn about the options/restrictions with Medicaid Waivers for living arrangements Use technology to monitor safety, reduce care- giver role Put your child’s name on the waiting lists for low- income housing Talk to your child’s case manager, school transition team, LIDDA Talk to other parents who have experience 10

Models for developing a home Housing situation helps sons of UT faculty improve independence https://www.dailytexanonline.com/2017/10/02/housing-situation-helps- sons-of-ut-faculty-improve-independence New Independent Living Options for Those on the Autism Spectrum https://www.nytimes.com/2013/10/10/garden/the-architecture-of- autism.html?pagewanted=1&_r=0&ref=general&src=me Beacon Hill Village http://www.beaconhillvillage.org/content.aspx?page_id=22&club_id=3326 58&module_id=77064 Video on AIM https://www.kvue.com/video/news/local/outreach/five-who- care/five-who-care-ashley-sanchez/269-8107530 Community for Permanent Supported Housing in DFW area https://www.txcpsh.org/

Resources to help with developing a home To find your local authority/LIDDA: dads.state.tx.us/contact/search.cfm The Arc of Texas webpage on housing issues and options for funding: thearc.org/what-we-do/public-policy/policy-issues/housing Texas Centers for Independent Living ilru.org Right column, Housing and Transportation, 2 guides with lots of detail. Texas Housing Counselor: Helping low-income Texans find a decent, affordable home texashousingcounselor.org/ Look at Section 811 Research on the web, for example, navigatelifetexas.org→transition-to- adulthood→housing (Really helpful website!! Click on the video.) Information and ways to make decisions: http://colemanfoundation.typepad.com/files/housing_support_options_people_w_id d_2013.pdf Housing and disability in Canada https://mail.google.com/mail/u/0/#label/home+and+legal/13f104a276a10791

Texas Parent to Parent resources How-to for Setting Up a Supported Residence, by TxP2P staff https://www.txp2p.org/Media/Transition/howto_for_setting_ up_a_home.pdf Register with txp2p and sign up for Creative Housing listserv Annual Parent Conference includes panel on homes that parents have set up Pathways to Adulthood workshops around the state; register at txp2p.org for 1-1 assistance: cynda.green@txp2p.org or Toll Free: 866- 896-6001 to discuss any transition issue