Selected References Association of Palliative Medicine, 2015 Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease.

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Presentation transcript:

Selected References Association of Palliative Medicine, 2015 Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease. http://apmonline.org/wp- content/uploads/2016/03/Guidance-with-logos-updated-210316.pdf (accessed 02/03/2018) Bach JR, Bianchi C, Aufiero E. Oximetry and indications for tracheostomy for amyotrophic lateral sclerosis. Chest 2004;126:1502e7. Burkhardt, C. et al 2017. Is survival improved by the use of NIV and PEG in amyotrophic lateral sclerosis (ALS)? A post-mortem study of 80 ALS patients. https://www.ncbi.nlm.nih.gov/pubmed/28542233 (accessed 02/03/2018) Bourke, S.C., Tomlinson, M., Williams, T.L., Bullock, R.E., Shaw, P.J. and Gibson, G.J. (2006) ‘Effects of non invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial’, Lancet Neurology, vol. 5, pp. 140–7. Ishikawa, Y. et al 2011 Duchenne muscular dystrophy: survival by cardio-respiratory interventions Neuromuscul Disord. 2011 Jan;21(1):47-51 The National Institute for Health and Care Excellence , 2016. Motor neurone disease: assessment and management. https://www.nice.org.uk/guidance/ng42 (accessed 02/03/2018) Palmer et al 2018, UK Based Tracheostomy Ventilation in Motor Neurone Disease: A Multi- Centre Review. Thorax 2017;72:A28 Sancho J, Servera E, Diaz JL, et al. Home tracheotomy mechanical ventilation in amyotrophic lateral sclerosis patients: causes, complications and 1-year survival. Thorax. Published Online First: 21 June 2011. Simmonds, AK, Elliott, MW. Outcome of domiciliary nasal intermittent positive pressure ventilation in restrictive and obstructive disorders. Thorax 1995; 50: 604–609.

Further Reading/Watching MND in acute, urgent and emergency care https://www.mndassociation.org/wp-content/uploads/px017-mnd-in-acute-urgent- and-emergency-care.pdf NIV for MND https://niv.mymnd.org.uk Cough management Chatwin, M.C, et. Al. 2018 Airway clearance techniques in neuromuscular disorders: A state of the art review. http://www.resmedjournal.com/article/S0954-6111(18)30020- 9/fulltext (accessed 10/04/2018) NIV in MND e-learning package https://portal.e-lfh.org.uk/Component/Details/506036

Questions and evaluation Close of Day Questions and evaluation