Greater Manchester Cancer Good Morning and Welcome! Macmillan User Involvement Programme Development Away Day Saturday 10th February 2018

Welcome and Introductions Greater Manchester Cancer Welcome and Introductions House Keeping The most important things…… Tea/Coffee at 11.20am Lunch at 12.30  Tea/coffee at 3pm ish

Linda Hill Macmillan Engagement Lead Greater Manchester Cancer Linda Hill Macmillan Engagement Lead How we got here!

Claire O’Rourke Senior Manager Greater Manchester Cancer The context of User Involvement in Greater Manchester Cancer

Away Day 2018 By: Leila Coleen Greater Manchester Cancer Both Introduce

Away Day 2018 – Ground rules Safe Place Respect Listen Greater Manchester Cancer Away Day 2018 – Ground rules Safe Place Respect Listen CONFIDENTIALITY! Coleen – First two Safe place/Respect Leila – Listen/Confidentiality

How Today Has Been Co-Produced Greater Manchester Cancer How Today Has Been Co-Produced 2 Saturday Meet ups Leila Today has been co- produced by a small group of service user representatives over two Saturdays. - We felt there was a need for all SUR to meet up and get to know each other. - 100 Service User Representatives (SUR) in database. - A lot of hard work to work out what we really wanted the day to look like and what are aims and objectives were. - A socialising event making time to get to know each other as well as what being a SUR means. - Steering group approved the content of the day once the 2 meet ups happened. Socialise A lot of hard work Steering group

Greater Manchester Cancer Aims and Objectives An opportunity for our Service User Representatives to network and get to know each other To showcase the work our service users have been involved in and celebrate achievements of the programme so far. To all agree on the future priorities of the User Involvement Programme 2018-2019 To co-produce with SUR’s the UI programme 2018 work plan Coleen

What We Would Like to Achieve Greater Manchester Cancer What We Would Like to Achieve Create profiles for all the SUR’s on the database That you feel a part of something Encourage active participation Engage with the programme in varying ways and actively contribute Provide support for your involvement in the programme IMPROVE CANCER SERVICES IN GREATER MANCHESTER! Leila SUR – will send out on Friday emails.

Greater Manchester Cancer What We Want From You Share your current understanding of what it means to be a SUR How you are already involved Honesty about the current opportunities available You’re ideas on how to improve User Involvement Socialise and network with everyone Coleen

Greater Manchester Cancer Questions?

Ambitions of the Cancer Plan from a patient perspective Greater Manchester Cancer Ambitions of the Cancer Plan from a patient perspective Nabila Farooq and Ian Clayton User Representatives on GM Cancer Board GM User Involvement Programme

NHS Plan Five Year Forward View (FYFV) Greater Manchester Cancer NHS Plan Five Year Forward View (FYFV) Aims to address the three gaps…. Health & wellbeing Care & quality Funding

National Cancer Strategy ‘Achieving World Class Outcomes’ Greater Manchester Cancer National Cancer Strategy ‘Achieving World Class Outcomes’   Published 2015 by Independent Cancer Taskforce Outlines 6 key strategic priorities (2 against each of 3 gaps in FYFV) Radically upgrade prevention and public health National drive for earlier and faster diagnosis Put patient experience on a par with clinical effectiveness and safety Transform approach to living with and beyond cancer Invest in high quality modern services Transform commissioning, provision and accountability

National Cancer Vanguard Greater Manchester Cancer National Cancer Vanguard Main delivery vehicle of National Cancer Strategy, aims to tackle the 3 gaps in FYFV by: Transforming clinical model of delivery - (key themes- early diagnostics, improving survival, providing the recovery package) Implementing enabling infrastructure - (key themes- dashboards, outcomes measurement, shared reporting, standardisation of treatment / reducing inequitable variations) Changing the system architecture - (key theme- commissioning)

Programme Scope - GM Cancer Vanguard Greater Manchester Cancer Programme Scope - GM Cancer Vanguard Develop and test number of innovative ideas and solutions for cancer care Pursue better prevention, screening and awareness initiatives Eliminate the postcode lottery of care in Greater Manchester Improve aftercare for cancer patients Fully committed to developing streamlined commissioning arrangements, reviewing and testing potential reforms to funding and payment mechanisms

The Greater Manchester Vision Greater Manchester Cancer The Greater Manchester Vision “We want to achieve world class cancer outcomes and experience for the people of Greater Manchester through the delivery of cancer services that are sustainable and value for money”

Greater Manchester Cancer World Class Outcomes “We know there is variation and inequality in cancer outcomes and experience across the localities that make up GM. As well as looking at our performance as a conurbation, we will also monitor and seek to improve performance across all our localities to match the best”

Greater Manchester Cancer The 6 Key Objectives

Our Role on the Cancer Board Greater Manchester Cancer Our Role on the Cancer Board Lay person / patient voice Represent all GM patients (and future patients) through the user involvement infrastructure Challenge the system and hold to account Support and champion Conduits back to UI community

Greater Manchester Cancer Where now ……?

Achievements of User Involvement in Greater Manchester Greater Manchester Cancer Achievements of User Involvement in Greater Manchester Pit-stop talks 1 Karen Farrow – Brain Tumour: Support for your family members 2 Tony Bishop – being involved in a Vanguard Innovation project 3 Mark Price - progress that has been made through the Head & Neck Pathway Board from a patient’s perspective 4 Nev Care – Learning and Development subgroup and the evaluation and co-production of the Programme Induction Sessions

User Involvement The good, the bad and the ugly! Greater Manchester Cancer User Involvement The good, the bad and the ugly! Table Discussions with Facilitators What has worked well, not so well – has anything gone wrong?! Lets understand the ‘why’…….

Making the Cancer Plan work for you… Greater Manchester Cancer Making the Cancer Plan work for you… Conversation Café

Co-produce the UI Programme 2018 Work Plan Greater Manchester Cancer Output from today….. Agree priorities Just to remind everyone about some of the objectives for today are to identify what are the priorities for the UI programme and co-produce our work plan for this year. Co-produce the UI Programme 2018 Work Plan

Our SURs influence in the system Greater Manchester Cancer Our SURs influence in the system UI is now embedded into the structure of GM Cancer – Therefore, we are a fundamental part of designing, improving and monitoring of the cancer system. We have 2 user reps on every pathway board and Cancer Board, all are a place to influence, challenge and hold to account, listen and learn, offer our input and experience and importantly to keep reminding everyone that patients/service users should be central to whatever is happening – So this an important mechanism for how we will help improve cancer services in GM

Areas of work - what’s priority... Greater Manchester Cancer Areas of work - what’s priority... Recovery Package Waiting times from referral to treatment (62days) Patient experience Psychological support – living with and beyond Supportive and Palliative Care Prevention and early diagnosis These are some of the key areas of work that our service users involved in the programme feel are a priority from a patient/carer perspective. These are all things that are committed to in the GM cancer plan and are happening or should be happening across the cancer system. The first 5 bullets are cross cutting and affect every tumour site/pathway – these should be part of the work of every pathway board! The other 2 are a little more specific areas but there are work streams within GM responsible for these areas of work. So what we will be asking you to do later on at the end of the day is to tell us what you think are top 3 things that matter most. This will help guide us to know what are the areas that the UI programme needs to spend more energy on. This will help our Pathway/Cancer Board reps know how what they should be looking for and they can then be holding boards to account for the delivery of these priorities on behalf of people affected by cancer.

Enabling Work Streams Communication and engagement Greater Manchester Cancer Enabling Work Streams Communication and engagement Equality and Diversity Learning and Development Also, as mentioned earlier today you will have seen the 3 flip charts around the room with these headings on. These were issues that constantly came up throughout the planning sessions and regularly come up in lots of conversations we have with our SURs throughout all the work we do. Therefore, rather than add these as a priority, we felt it was important to make sure that these become some of the ongoing work which will underpin the programme and act as enablers to ensure we can delivery the objectives of the programme. So please also during this session have a look at those, we are also looking for anyone who is interested in being on the working groups.

Purpose of this session Greater Manchester Cancer Purpose of this session So the purpose of this session is for you to have some open space to find out more about some of these areas of work that have so far been identified as important aspects of cancer care, service development and delivery that must improve across GM. Lots of you in the room have tons of knowledge about some of these issues, so this is now about sharing your insights, knowledge, passion and also gaining some more knowledge and awareness of things you might not know so much about! There is an area of work on each table and a brief overview of each one and what GM has committed to do about it. The MUIT are on the tables – shout out where you are what topic… You can jot ideas thoughts down on the paper table clothes as you go round, could be anything at all, your thoughts about the issue, you might want to know more about it…anything .. This is your space, so you decide what table / area to go to, some of you know about some of these areas of work so please share your knowledge with each other…. Time to mingle!

Conversation Café Time to Mingle …..!!  Greater Manchester Cancer Conversation Café Time to Mingle …..!! 

How Do People Affected by Cancer Represent Greater Manchester? Greater Manchester Cancer How Do People Affected by Cancer Represent Greater Manchester? Table Discussion with Facilitators How can the user involvement programme support our SUR to be representative of patients from across Greater Manchester?

User Involvement Programme Priorities for 2018 Greater Manchester Cancer User Involvement Programme Priorities for 2018

Richard Preece Cancer Board Chair Greater Manchester Cancer Richard Preece Cancer Board Chair

Greater Manchester Cancer Summary and Next Steps Sarah, Ian and Nabila

Greater Manchester Cancer Thank you for giving up your Saturday to help improve our Cancer Services for all those in Greater Manchester