Independent Living Campaign Conference

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Presentation transcript:

Independent Living Campaign Conference

Background to the campaign

Background to the campaign Delayed ILF closure by three months, government needed to retake closure decision, high court judgments stating the serious adverse impact of the closure Raised profile of independent living for disabled adults Article 19 of the Convention on the Rights of Persons with Disabilities referenced in the Care Act 2014 statutory guidance Government pressed into finding additional £7bn for “Former ILF Recipient Grant” Peer support network Legal advice and resources

Challenges Cycle of reassessments and fear Community care solicitors working beyond capacity Limitations of judicial review Green paper on social care excludes working age disabled people

Common issues Cuts to support packages Replacing personal assistance with technology/equipment Not following Care Act procedure for reassessments and reviews Not funding night-time support Misinterpretation of “independent living” Reliance on unpaid support Referral for CHC (Continuing Healthcare) funding Low hourly rates – difficulty recruiting PAs Lack of infrastructure support for managing Direct Payments/Personal Budgets Care managers not understanding employment liabilities Introduction of harsher charging policies

Recap since last national meeting Evidencing the impact of the ILF closure – Inclusion London report, Channel four FOIs, DWP evaluation Prepayment cards template letter and report EHRC action against CCG capping policies United Nations – inquiry report, concluding observations from the routine examination, general comment on Article 19 Campaign to save the Welsh Independent Living Grant National Disabled People’s Summit

Opportunities Government work-stream for working age disabled adults Labour party policy – commitment to enshrine UNCRPD and work with disabled people on setting up a national “care” system EHRC work to explore different options to legislate for a right to independent living Research project to explore alternative models

Priorities Continuing to monitor and evidence what is happening Support for individuals – peer/legal Strategic litigation Setting out and lobbying for our vision for a national independent living support system Fighting institutionalisation

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