NATIONAL CORE INDICATORS FAMILY SURVEY RESULTS FY10-11 Presented to the Regional Center of Orange County Board of Directors October 3, 2013 by LeeAnn Christian

The Essence of the Board’s Role To ensure that RCOC is fulfilling its mission How do you know? If RCOC is financially accountable? If RCOC is in compliance with legal and regulatory requirements? If RCOC is truly meeting the needs of the people you serve?

What is National Core Indicators? NCI is a voluntary effort by public developmental disabilities agencies to measure and track performance Collaboration began in 1997 Currently 38 states and Washington, D.C. Coordinated by HSRI and NASDDDS Human Services Research Institute National Association of State Directors of Developmental Disabilities Services

What is an “Indicator”? Indicators are standard measures used across states to assess the outcomes of services provided to individuals and families Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, health, wellness and safety

Health, Welfare, & Rights NCI Framework Individual Outcomes Employment Choice & Decision-Making Relationships Community Participation Family Indicators Information & Planning Access to Supports Community Connections Choice & Control Health, Welfare, & Rights Health & Wellness Safety Respect & Rights System Performance Service Coordination Incidents & Mortality Staff Turnover

What are the Data Sources? Family Surveys Paper/pencil mail-in surveys Adult children living at home Adult children living away from home Minor children living at home Consumer Survey Face-to-face interviews Adults 18+ years

Accountability through NCI Measures strategic goal achievement Responds in ways that communicate system values Enhances transparency of the agency’s performance Involves and gives voice to individuals and families in the conversation about quality and outcomes

Family Survey Results Fiscal Year 2011 Adult Family Surveys (AFS) – at home Statewide – 4014 surveys completed RCOC – 186 surveys completed Guardian Family Surveys (GFS) – away from home Statewide – 4096 surveys completed RCOC – 256 surveys completed

Characteristics of Family Members Adult Family (at home) Family Guardian (away from home) Gender 53% male 62% male Average Age 32 41 Disability   Autism 22% 21% Cerebral Palsy 18% 15% Intellectual Disability 67% 74% Seizure Disorder 26% Race/Ethnicity Asian 6% Hispanic 29% 4% White 44% 83% Primary Language – English 64% 95%

Characteristics of Survey Respondents Adult Family (at home) Family Guardian (away from home) Age   54 and under 46% 16% 55 and over 54% 84% Relationship Parent 90% 85% Legal Guardian 58% 53% Visits with Family Member 3 or less times year n/a 14% 4 to 12 times per year More than 12 times per year 70%

INFORMATION & PLANNING Families/family members with disabilities have the information and support necessary to plan for their services and supports

ACCESS & SUPPORT DELIVERY Families/family members with disabilities get the services and supports they need

COMMUNITY CONNECTIONS Family members with disabilities use integrated community services and participate in everyday community activities

SATISFACTION & OUTCOMES Families/family members with disabilities receive adequate and satisfactory services and supports Individual and family supports make a positive difference in the lives of families

Summary of RCOC Family Surveys Generally in-line with CA averages Areas of Strength Satisfaction with services/supports received Service coordinators are knowledgeable and courteous Services are respectful of family’s culture Possible Focus Areas Consumer helping develop IPP Educating families about complaint and abuse/ neglect reporting processes

Moving Forward Further analyze NCI results and look at other data that may provide additional insight Present NCI results to various audiences, e.g., RCOC staff, Consumer Advisory Committee, Vendor Advisory Committee, at a Board meeting Form Ad Hoc Advisory Council to review Family Survey results Target areas for improvement and suggest strategies to impact change