Outcomes Important to Patients, Public and Practitioners - Key results

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Presentation transcript:

Outcomes Important to Patients, Public and Practitioners - Key results Method: Facebook survey then face to face workshop 18 people participated, 13 people with asthma/carers 69 outcomes described Important outcomes symptoms, quality of life, flare ups, and adherence (patients prefer ‘control’) Some overlap with outcomes used in asthma systematic reviews, but also gaps e.g. death Method: Online survey 235 people participated, 155 health practitioners, 80 people with rhinosinusitis 549 ‘in scope’ outcomes generated 73% of these concerned symptoms (sino-nasal and general), expressed by both patients and professionals. Correlate with outcomes used in rhinosinusitis systematic reviews Method: Secondary analysis of Healthtalk breastfeeding data 51 interview transcripts independently assessed by 2 researchers Generated 15 outcome themes inc; decision making ,role as a mother, mum and baby bonding, routine, and sleep Outcomes used in SRs (measures of breastfeeding, e.g. duration, objective outcomes for baby e.g. growth, objective outcomes for mum e.g. weight loss) Some correlation e.g. support for breastfeeding. Unable to ID important outcomes Asthma - Image is of some of the workshop participants Mix of people with asthma (x 10 age and types of asthma) parents (2) and HPs (6) (GP, asthma nurses, advice line advisor, respiratory physician) ENT – image is from the promotional material we used in emails and social media 104 out of scope outcomes shared across HPs and Patients - Outcomes as symptoms patients 80% and profs 68% Breastfeeding - image is of the mind map that the researchers developed from the re analysis of the data 49 women and 2 men These results will be available in more detail in the summaryreports of each pilot and subsequent papers I would now like to highlight one key issue from each pilot share out learning and insights