Conflict of Interest Disclosure FLORENCE LUSTMAN Has no real or apparent conflicts of interest to report.

A national strategy: implementation of the French Alzheimer plan 2008-2012 ADI – 28 march 2011 Florence Lustman, inspecteur général des finances

The main challenges of the plan A commission chaired by Pr Ménard 10 members, 8 working groups, 100 people, 3 months Report to the President on 8 november 2007 A financial effort on 5 years 200 M€ for research 200 M€ for medical care 1,2 billion euros for medico-social support A new governance based on transparency Direct reporting to the President of the French Republic every 6 months Coordination and assessment Steering committee every month Supervisory committee every 4 month

Plan Alzheimer 2008-2012 Solutions explorer and organizer Respect Cure Health 3 axis Research Solidarity Respect guarantee the dignity of the person with Alzheimer ’s and ethics of this key social issue Cure know the disease and find a medical treatment Take care look after and increase quality of life for patients and carers 3 objectives Family caregiver Disease 3 targets Person with Alzheimer’s Let healthy ageing have a future

Research Foundation Plan Alzheimer Over 20 major international publications in 2010 104 research projects – 70 M€ 112 new researchers Structuration National epidemiologic data bank : 145 000 patients Clinic epidemiology training for 607 doctors 3 cohorts (3C, MEMENTO, young patients) Methodology support group Imaging center

www.neurodegenerationresearch.eu

http://www.espace-ethique-alzheimer.org

Personal pathway for a person with dementia Alzheimer’s plan : 2012 DIAGNOSING TAKING CARE General practioner Home Home rehabilitation Respite and support platforms Person with dementia Breaking the diagnosis Supporting MAIA Training for professional and family caregivers Family caregiver Simplifying Assessing Orientating Specialist Neurologists Memory centres Centre for young Alzheimer ’s patients Out of home : specialized structures Hospital Nursing home RESEARCHING TO CURE, CARE AND INCREASE QUALITY OF LIFE

Places for diagnosis in France Paris and petite couronne Liberal neurologists Memory centers 15 CM 10 250 500 km CMRR 5 Source : DHOS 2009 & CNAM 2009 9

National center for young patients with AD National reference centre for young Alzheimer ’s patients Local correspondants

Places Day care centers Structures

Alzheimer rehabilitation teams

Special care units in nursing homes

Measuring patients’ quality of life CLINICAL PRACTICE INDICATORS OF ALERT AND MASTERING OF THE IATROGENICITY OF NEUROLEPTICS IN ALZHEIMER PATIENTS

Website : www.plan-alzheimer.gouv.fr

Tentative conclusions after 3 years out of 5 Need for phase 1 : testing pilot solutions with all partners before validating adequate and replicable solutions (time consuming) Global implementation is slow All objectives won’t be achieved by the end of 2012 : the President of the French Republic has annouced a follow-up of the Plan after 2012