Tackling Lung Cancer Policy Kristy Young, MS, Ches & Lori Earnshaw, MD, FAAHPM

How I became involved in ACS CAN Met James Sharp, ACS-CAN KY Grass Roots manager at the time, in October 2012 when I presented “Treating Pain and Preventing Abuse: The Societal Balancing Act,” at Kentucky Cancer Consortium quarterly meeting. ACS-CAN national interest in pt QOL and PC Became ACT Lead This was how I fell into it…but looking back, I have ideas about how you can be deliberate about getting involved in advocacy…

Personal Inventory What do you value? What are you passionate about? Who are the stakeholders? Organizations/Associations Individuals How do you engage? How do you focus your efforts? Patient Quality of Life Patient Quality of Life Coalition: AAHPM, CAPC, LCA, ACS CAN Just ASK! Get involved. Model legislation

ACS CAN Model QOL Legislation “Establish a Palliative Care and Quality of Life Interdisciplinary Action Council to improve the quality and delivery of patient-centered care” “Establish…the statewide Palliative Care Consumer and Professional Information and Education Program within the cabinet” Require that “all health facilities shall establish a system for identifying patients or residents who could benefit from palliative care” Brought to KY, James passed baton to Erica Palmer Smith

Engaging Experts & Clinical Champions Role of Clinical Champion: Provide content expertise Interpret evidence Tell patient stories Serve as an advisor Talk about how Erica and I worked together

Role of Grassroots Manager Identify and recruit new volunteers – Are you an ACS CAN member? Educate and train volunteers on ACS CAN priority legislation Plan and execute Day at the Capitol Advocate Social media Work closely with Government Relations Director to help move legislation Kristy take over here—what does the grassroots manager do to gain support for legislation? How does it work? Rally the troops.

Grassroots Movement Kristy

A Day at Kentucky’s Capitol Kristy It all culminates here… All volunteers do the important work of asking their lawmaker

Action Items Do your personal inventory Step up as a clinical champion Become an ACS CAN member Collect stories Be prepared Kristy

THANK YOU!