IDA-IDDC presentation 26-27 Data Meeting

Disaggregating SDG indicators by disability Background of the IAEG-SDGs: On 6 March 2015, at its forty-sixth session, the UN Statistical Commission created the Inter-agency and Expert Group on SDG Indicators (IAEG-SDGs), composed of Member States and including regional and international agencies as observers. The IAEG-SDGs was tasked to develop and implement the global indicator framework for the SDGs. Subsequently, the global indicator framework adopted by the UN General Assembly on 6 July 2017 (A/RES/71/313). The IAEG-SDGs continues to refine the global indicators

IDA and IDDC participation in the IAEG-SDGs: IDA and IDDC have been very active in advocating for the (i) development of disability inclusive indicators and for (ii) all relevant indicators to be disaggregated by disability IDA and IDDC began advocating in 2014 in early discussions around SDG indicators. Following this, IDA and IDDC have participated in all of the IAEG-SDGs meetings (from 2015 to 2018) in New York, Bangkok, Mexico City, Geneva, Ottawa, Manama, and forthcoming in Vienna. IDA and IDDC have also participated in the UN Statistical Commission every year form 2015 to 2018 since the IAEG-SDGs was established. TODAY there are 232 global indicators, out of which 11 are disability inclusive and disaggregation of data by disability is declared as recommended principle.

Process The work of the IAEG-SDGs around the global indicator framework is not transparent, not inclusive, and not participatory, which is contrary to the spirit of the 2030 Agenda for Sustainable Development. This means the members of IAEG-SDGs deliberate among themselves behind closed doors and only last two days are open to observers, international agencies and civil society, when the decisions have already been taken. To address these barriers, IDA and IDDC have worked closely with other civil society groups to advocate for space at the IAEG-SDGs meetings. This was particularly effective in Bahrain in which civil society had speaking slots and met with the IAEG-SDGs co- chairs. Consequently, the structure of the IAEG-SDGs session has been altered to accommodate civil society and UN Agencies better and this will be in effect at the next meeting in Vienna in April 2018.

The 49th Session of the UN Statistical Commission (2018) Discussions on the SDGs global indicator framework General discussions on the global indicator framework is ALARMING! Member States remain concerned about the large numbers of indicators (232) and as such: (i) suggest to reduce their number, maintain only the measurable ones. [Member States want to keep only Tier I indicators (only one disability indicator is Tier I – employment).] (ii) and suggest to prioritize disaggregation criteria outlined in target 17.18 (including disability) by feasibility. [Member States also expressed that there is a need to be realistic about what indicators can be disaggregated by characteristic. WITHOUT MEASURABLE DISABLITY INCLUSIVE INDICATORS AND WITHOUT A CLEAR RECOMMENDATION FOR METHODOLOGY ON HOW TO DISAGGREGATE INDICATORS BY DISABILITY THERE WILL BE NO DATA COLLECTED ON THE SITUATION OF PERSONS WITH DISABILTIIES

Priority list of SDGs indicators to be disaggregated by disability IDA and IDDC, in consultation with UN agencies, identified 32 critically important indicators which should be disaggregated by disability in order to gain data on the situation of persons with disabilities worldwide.   Priority list and request to use the short set of questions developed by the Washington Group has been shared with the Co-Chairs of the disaggregation work stream. It is critical that the next meeting of the IAEG-SDGs indicator in Vienna makes a clear recommendation to use the SS WG for disaggregation. It is a tested methodology that is producing results/numbers that is needed to addressed challenges faced by persons with disabilities.

What is at stake? Bahrain, vienna, and beyond

For a fact there is a lack of data on the situation of persons with disabilities worldwide. The lack of sound disaggregated data for persons with disabilities exacerbates vulnerabilities by masking the extent of deprivation and disparities AND there is no accurate documentation on the discrimination faced by persons with disabilities. As a result, planning and budgeting for necessary accommodation along with effective policymaking have suffered AND persons with disabilities have largely fallen off the statistical “map”.

Persons with disabilities have been included in the 2030 Agenda, because global advocacy shifted from human rights arguments to using data, which have proven more effective in development discourse. IDA and IDDC consider data critical, and as such have been advocating to collect data on persons with disabilities at the all levels. Member States recognized the need for data on persons with disabilities and consequently included it in the SDGs (17.18) and subsequently the global indicator framework. BUT there will be no data collection and no disaggregation of data by disability as long the IAEG-SDGs doesn’t offer a clear methodological guidance.

In 2018 at the UN Statistical Commission meeting it was obvious that Member States are calling for guidance and want methodology, requesting prioritization of disaggregation characteristics. What does that mean? If the IAEG-SDGs is not going to make a clear recommendation to use the short set of questions developed by the Washington Group for disaggregating data, or offers several competing methodologies, Member States will not collect data on disability! And, persons with disabilities will be left behind worldwide.

Priority list indicators: Goal 1. End poverty in all its forms everywhere 1.1.1 Proportion of population below the international poverty line, by sex, age, employment status and geographical location (urban/rural) 1.2.1 Proportion of population living below the national poverty line, by sex and age 1.3.1 Proportion of population covered by social protection floors/systems, by sex, distinguishing children, unemployed persons, older persons, persons with disabilities, pregnant women, newborns, work-injury victims and the poor and the vulnerable

Goal 3. Ensure healthy lives and promote well-being for all at all ages 3.3.1 Number of new HIV infections per 1,000 uninfected population, by sex, age and key populations 3.8.1 Coverage of essential health services (defined as the average coverage of essential services based on tracer interventions that include reproductive, maternal, newborn and child health, infectious diseases, non-communicable diseases and service capacity and access, among the general and the most disadvantaged population) 3.8.2 Proportion of population with large household expenditures on health as a share of total household expenditure or income

Goal 4.. Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all 4.1.1 Proportion of children and young people: (a) in grades 2/3; (b) at the end of primary; and (c) at the end of lower secondary achieving at least a minimum proficiency level in (i) reading and (ii) mathematics, by sex 4.2.2 Participation rate in organized learning (one year before the official primary entry age), by sex 4.3.1 Participation rate of youth and adults in formal and non-formal education and training in the previous 12 months, by sex 4.4.1 Proportion of youth and adults with information and communications technology 

4.5.1 Parity indices (female/male, rural/urban, bottom/top wealth quintile and others such as disability status, indigenous peoples and conflict-affected, as data become available) for all education indicators on this list that can be disaggregated 4.6.1 Proportion of population in a given age group achieving at least a fixed level of proficiency in functional (a) literacy and (b) numeracy skills, by sex 4.a.1 Proportion of schools with access to: (a) electricity; (b) the Internet for pedagogical purposes; (c) computers for pedagogical purposes; (d) adapted infrastructure and materials for students with disabilities; (e) basic drinking water; (f) single-sex basic sanitation facilities; and (g) basic handwashing facilities (as per the WASH indicator definitions)

Goal 5. Achieve gender equality and empower all women and girls 5.2.1 Proportion of ever-partnered women and girls aged 15 years and older subjected to physical, sexual or psychological violence by a current or former intimate partner in the previous 12 months, by form of violence and by age 5.2.2 Proportion of women and girls aged 15 years and older subjected to sexual violence by persons other than an intimate partner in the previous 12 months, by age and place of occurrence 5.6.1 Proportion of women aged 15-49 years who make their own informed decisions regarding sexual relations, contraceptive use and reproductive health care

Goal 8. Promote sustained, inclusive and sustainable economic growth, full and productive employment and decent work for all 8.5.1 Average hourly earnings of female and male employees, by occupation, age and persons with disabilities 8.5.2 Unemployment rate, by sex, age and persons with disabilities Goal 10. Reduce inequality within and among countries 10.2.1 Proportion of people living below 50 per cent of median income, by sex, age and persons with disabilities 10.3.1 Proportion of population reporting having personally felt discriminated against or harassed in the previous 12 months on the basis of a ground of discrimination prohibited under international human rights law

Goal 11. Make cities and human settlements inclusive, safe, resilient and sustainable 11.2.1 Proportion of population that has convenient access to public transport, by sex, age and persons with disabilities 11.7.1 Average share of the built-up area of cities that is open space for public use for all, by sex, age and persons with disabilities 11.7.2 Proportion of persons victim of physical or sexual harassment, by sex, age, disability status and place of occurrence, in the previous 12 months

Goal 16. Promote peaceful and inclusive societies for sustainable development, provide access to justice for all and build effective, accountable and inclusive institutions at all levels 16.1.3 Proportion of population subjected to physical, psychological or sexual violence in the previous 12 months 16.1.4 Proportion of population that feel safe walking alone around the area they live 16.2.1 Proportion of children aged 1-17 years who experienced any physical punishment and/or psychological aggression by caregivers in the past month 16.2.3 Proportion of young women and men aged 18‑29 years who experienced sexual violence by age 18

16.7.1 Proportions of positions (by sex, age, persons with disabilities and population groups) in public institutions (national and local legislatures, public service, and judiciary) compared to national distributions 16.7.2 Proportion of population who believe decision-making is inclusive and responsive, by sex, age, disability and population group 16.b.1 Proportion of population reporting having personally felt discriminated against or harassed in the previous 12 months on the basis of a ground of discrimination prohibited under international human rights law 16.9.1: Proportion of children under 5 years of age whose births have been registered with a civil authority, by age

Goal 17. Strengthen the means of implementation and revitalize the Global Partnership for Sustainable Development 17.8.1 Proportion of individuals using the Internet

Endorsement list 132 endorsements received in short amount of time Endorsements came from all continents. …..

Thank you!