The Caregiver’s Tip Guide Brenda Taylor, Founder ESRD Rockstars
NOT ALL SUPERHERO’S WEAR CAPES CAREGIVERS FOR KIDNEY PATIENTS SUPERHERO’S
INFORMAL CAREGIVING
What Is Informal Caregiving? Support provided to individuals who are either temporarily or permanently unable to function independently. Informal caregivers often have a long-term commitment to the person(s) they are helping.
Caregiving Can Involve a Range of Activities Such As: Assisting with personal hygiene Helping with medication (administering pills, injections, etc.) Assisting with doctor visits Performing wound care Managing finances Acting as a patient advocate Providing emotional support (HUGE!)
Challenges As a Caregiver: DON’T BE TOO HARD ON YOURSELF Balancing family dynamics Emotional and physical stress Lack of privacy Financial hardship Sleep deprivation Time management Being afraid to ask for help Depression and Isolation
Where Do You Begin?
Remember, When Taking Care of Renal Patients… Each patient is different. Do what works BEST for YOU!.... KNOW THAT YOU CAN DO THIS!!!
Things Caregivers Should Know About Dialysis Modalities-Different ways you can receive dialysis Hemodialysis In-Home Peritoneal dialysis-home dialysis Kidney Transplant
Patient Compliance-the degree to which a patient correctly follows medical advice. This include treatment and medication compliance. THE 4 IMPORTANT POINTS IN LIVING A LONG HEALTHY LIFE AS A KIDNEY PATIENT: Compliance Treatment Diet Fluid Restriction Medication
Caregiver Roles Informal Caregiver Sole Role TIPS FOR BEING THE SOLE INFORMAL CAREGIVER Time management Organize Tasks Delegator-Asking others who are willing to complete various tasks
Caring for Yourself!!!
Strategies for Dealing With Caregiver Stress: Accept help Focus on what you are able to provide Set realistic goals Get connected Join a support group Seek social support Set personal health goals See your doctor
I Wouldn’t Change My Journey…
ESRD ROCKSTARS!!! www.esrdrockstars.com
Brenda Taylor, Founder http://www. esrdrockstars Brenda Taylor, Founder http://www.esrdrockstars.com/ Email: admin@esrdrockstars.com
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