Agenda 7:30pm Welcome M. Everitt/R. Chinnock/J. Alejos 7:40pm Steering Committee Update Melanie Everitt 7:45pm DCC Update James Kirklin 8:00pm Database Committee Report Marc Richmond 8:15pm Foundation Update Craig Collum 8:30pm DISCUSSION Research Project Timeline of Submission Progression of Elections 8:55pm Pedimacs Update Betsy Blume 9:10pm Scientific Committee Report Anne Dipchand 9:20pm New Officers and New Business 9:30pm Adjourn

Nov. 2015 - Nov. 2017 Steering Committee Melanie Everitt, MD Marc Richmond, MD, MS Rob Gajarski, MD, MHSA Nancy McDonald, NP James Kirklin, MD Elfi Pahl, MD (2016-2018) Alfred Asante-Korang, MD Gerard Boyle, MD Kimberly Lin, MD President Vice President Past President Non Physician Representative DCC Representative Steering/Scientific Comm. Liaison Member at large Member at Large

Nov. 2015 - Nov. 2017 Steering Committee Melanie Everitt, MD Marc Richmond, MD, MS Rob Gajarski, MD, MHSA Nancy McDonald, NP James Kirklin, MD Elfi Pahl, MD (2016-2018) Alfred Asante-Korang, MD Gerard Boyle, MD Kimberly Lin, MD President Vice President Past President Non Physician Representative DCC Representative Steering/Scientific Comm. Liaison Member at large Member at Large Thank You!

Nov. 2015 - Nov. 2017 Steering Committee Goals and Tasks Quality of Life Bylaws review and proposed revisions Change in requirement for 2 in-person Membership and Board meetings per year Change in election to Board and progression of PHTS Leadership Research oversight Statistical resources Limited data sets New collaborations International centers Pedimacs Industry

Quality of Life Committee Members Elfi Pahl, MD Ann & Robert H. Lurie Children’s Hospital of Chicago Beth Kaufman, MD Lucile Packard Children’s Hospital at Stanford Kathy Grady, PhD Northwestern University Kim Lin, MD The Children’s Hospital of Philadelphia Jo Wray, MD Great Ormond Street Hospital for Children, London Connie White-Williams University of Alabama at Birmingham Karen Uzark University of Michigan, CS Mott Children’s Hospital James Kirklin, MD Data Coordinating Center Elizabeth Pruitt, MSPH Kathleen Van’t Hof Mariah Strickland Children’s of Alabama Nancy McDonald Lucile Packard Children’s Hospital at Stanford Barb Roessner Children’s Hospital and Medical Center, Omaha Amy Rothkopf Columbia University-Morgan Stanley Children’s Hospital of New York Presbyterian Jennifer Conway, MD Stollery Children’s Hospital

Quality of Life Committee Committee Goals Review the different tools available for QoL data collection Select and test QoL tool Benefit of and challenges to data collection Explore appropriate interval for data collection Present findings and recommendations to the Membership

2018 Leadership Visit to UAB January 11 and 12, 2018 Guests Include: President/Chair of Steering Committee: Vice President/Chair of Database Committee: Marc Richmond, MD, MS TBA Foundation Chair Past Foundation Chair: Melanie Everitt, MD Rob Gajarski, MD, MHSA Scientific Committee Chair: Steering Liaison/Scientific Committee Vice Chair: Anne Dipchand, MD Elfi Pahl, MD