Jill Manthorpe Jill.manthorpe@kcl.ac.uk People with learning disabilities employing their own care workers: implications for professional practice Jill.

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Presentation transcript:

Jill Manthorpe Jill.manthorpe@kcl.ac.uk People with learning disabilities employing their own care workers: implications for professional practice Jill Manthorpe Jill.manthorpe@kcl.ac.uk

The future? The Golden Age (Cortona) The Nightmare (Fuseli) 21-Nov-18

The (quiet) transformation of adult social care ‘Councils should provide personal budgets for everyone eligible for ongoing social care , preferably as a direct payment, by April 2013.’ Department of Health ‘Vision for Adult Social Care’, 2010, para 4.49 = Increases in number of people directly employed by people using services and carers Paid workforce may include family members/adult fostering/shared lives 21-Nov-18

Range of policy and practice challenges (parked) How to allocate fewer resources fairly – use of outcomes Monitoring and review – light touch? Decisions about buildings based services – especially day care centres Whole context of reduced public expenditure 21-Nov-18

DP ~ IB ~ PB = SDS ~ ISF ~ PB ~ DP Nationally 52.8% of eligible adults are using personal budgets to arrange their care and support, = increase of almost 40% on the previous year (June 2012)

So you want to be the employer? Range of support from LA or ULO or others Benefits Role change Being the ‘boss’ Pitfalls and risks Taking on and letting go

So your mum wants to be the employer? Many carers act as care/care managers Some carers receive indirect DP (suitable people) Support planning and planning their support Another form of care work but outcomes good

So you want to be a directly employer care worker? Terms and conditions Friend or employee Managing relationships Stepping stone or career? Many employers? Oversight Support

Are people with LD different? Yes, but only to a limited extent … Huge range and scale of needs Reliance on family/parents Cumulative impact of life events Multi-morbidity Citizenship? … been there … Managing the money (‘burden’) Higher average budgets... Keen on choice, control …

Implications for professionals Being PB literate Knowing duty of care Changing landscape Relationship with other funding streams Monitoring & review Creativity Risk work Safety nets