Learning Disability Health Facilitator - RNLD

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Presentation transcript:

Learning Disability Health Facilitator - RNLD Kim Woolnough Learning Disability Health Facilitator - RNLD Learning Disability Health Facilitation Team 1

Learning Disabilities Mortality Review (LeDeR) programme (LeDeR) Programme established in response to the recommendations of the Confidential Inquiry into the premature deaths of people with learning disabilities (CIPOLD). It has been commissioned by NHS England, managed by the Healthcare Quality Improvement Partnership (HQIP) – we need to implement this. No apologises for messy slide – it’s about working together and making this happen locally !! www.bristol.ac.uk/sps/leder 2 2

LeDeR programme team at University of Bristol Local Area Contacts gillian.findley@nhs.net kim.lawther@nhs.net LeDeR programme team at University of Bristol Email: leder-team@bristol.ac.uk Tel: 0117 3310686 Website: www.bristol.ac.uk/sps/leder If you have any queries or need support about Leder Mortality reviews, contact your Local Area Contact 3

Reflecting on patient stories: What can we learn? 4

Proactive support Include cancer screenings in Health Action Plans Proactive education - Make use of easy read info Discuss cancer screenings at AHC Discuss family history - consider genetic counselling Hospital passports DisDAT for people with severe LD

Diagnosis/ Investigations support GP’s and hospitals reporting repeated DNA’s and referring to learning disability team Establishing Mental Capacity can take time. Break it down. Work in partnership. “They didn’t listen to me’’ - Listen to the person with LD and carers. A behaviour change is communication. DDES Macmillan Primary Care nurses (2w referral) Hospital Liaison Nurses Plan well - Social support and care needs in community

References Confidential Inquiry into the Premature Deaths of People with learning disabilities (2013) http://www.bristol.ac.uk/cipold/ Improving the uptake of screening services by people with learning disabilities across the South West Peninsula Learning Disabilities Mortality Review (LeDeR) Programme http://www.bristol.ac.uk/sps/leder/ 7