Slaying the Dementia Dragon: Alzheimer Organisations Responding to Stigma and Social Exclusion ADI Conference London 2012 Gráinne McGettrick.

Slides:

Advertisements

Similar presentations

Making dementia a European priority Marseille – 17 October 2008 Jean Georges, Executive Director.

Advertisements

Andover Mind Working with people with dementia more than 15 yrs Pilot site for dementia advice service Now also serving Winchester, Eastleigh, Romsey,

January Getting Dementia out of the Closet Glenn Rees CEO, Alzheimer’s Australia 24 th Conference of ADI 2009 Singapore.

DEMENTIA PAST, PRESENT AND FUTURE Glenn Rees AM Chair Elect, ADI.

Making the difference Jeremy Hughes, Chief Executive, Alzheimer’s Society ________________________________________________________________________________________.

DEMENTIA FRIENDLY, AGE FRIENDLY – WHAT DOES IT MEAN? MAREE MCCABE CEO ALZHEIMER’S AUSTRALIA VIC.

DEMENTIA FRIENDLY COMMUNITIES ______________________________________________________________________________________________ alzheimers.org.uk.

Reawakening the Mind Evaluation of Arts 4 Dementia’s London Arts Challenge in 2012 Arts interventions to re-energise and inspire people in the early stages.

/VB Exploring Dementia Friendly Communities Avril Dooley Grassroots Coordinator The Alzheimer Society of Ireland October 25 th 2012.

________________________________________________________________________________________ alzheimers.org.uk My name is not dementia.

Community engagement and community dementia forums ________________________________________________________________________________________ alzheimers.org.uk.

Willie Cruickshank.

Adult Social Care and Young Carers Richard Jones Executive Director of Adult and Community Services Lancashire.

John’s Campaign “My father entered hospital articulate and able – he emerged a broken man” Observer newspaper Nov 2014 John’s Campaign: for the right of.

Thinking differently about health, public health and social care.

Hear Our Voice SUPPORT FOR PEOPLE WITH DEMENTIA.

National Dementia Declaration. uk FROM HERE…

Kate Williams, Federico Palermiti, Chantal Ravera, Catherine Pastor Philippe Migliasso, Prof. Alain Pesce AMPA - Monegasque Association For Research on.

Comments & feedback from… © The Association for Dementia Studies Care Quality Commission Age UK Alzheimer’s Society Royal College of Nursing Ability Limited.

Quality of life: a comparison of the perspectives of paid staff, family relatives and individuals with dementia in care homes. Sarah Robertson Division.

Background… December Andover was one of 22 pilot sites nationwide supporting people with dementia and their carers March funding extended.

Marc Wortmann Executive Director Alzheimer’s Disease International London, UK.

1 1 Victoria Hare Programme Manager, Dementia Education and Training, HEKSS Dr Sophie Mackrell Network Manager, Time for Dementia Programme, Alzheimer’s.

Getting dementia: the housing challenge ________________________________________________________________________________________ alzheimers.org.uk Jeremy.

The role for housing in supporting re- ablement for people with dementia and national dementia policy update. Philippa Shreeve Department of Health – West.

The Global Dementia Environment Yves Joanette, PhD, FCAHS Chair, World Dementia Council ADNI Meeting Toronto, 2016.

Swansea Freetown Disability Link (SFDL) Swansea Freetown Disability Link was formed in the year 2011 with the aim to facilitate and exchange view on disability.

Community partnership comes alive

19th Asia Pacific Regional Conference of ADI

15th Annual Library Leadership Institute: Libraries at the Crossroads

East New York Viral Load Leaders Project

19th Asia Pacific Regional Conference of ADI

She could be your grandmother. But it could be even more different!

Impact of placement experience on recruitment

National Service Framework (NSF) for Older People & Dignity in Care

Becoming a dementia friendly housing, care and support organisation

[TITLE] Location, DD. Month YYYY

Build your Character Bishop Justus

State of the Nation’s Foster Care 2016

Specialist Director Eivind Lorentzen

14.2 Surveys and Questionnaire Design

Stepping up to tackle dementia

Unit 1: Promoting quality care

Head of Dementia Innovation The Abbeyfield society

Citizenship and Human Rights for people with dementia

ALZHEIMER’S ORGANISATIONS AGENTS OF CHANGE

Loneliness at Older Ages What does the research tell us?

Friday 13th October Hello to the Scottish Universities

Global Ageing and NCDS Richard Blewitt CEO HelpAge International 9 March 2012 ADI International Conference London.

Learning from the early stages of the ‘Circles of Support’ Project

Dudley Telecare Service Crystal Award Shortlisted

Marco Ouwehand ADI Conference London, 8 March 2012

In our mind , we experience many illusions

Build your Character Bishop Justus

Nurses: Leaders at the Core

Speak Out Merton Friday 12th January 2018

Alzheimer’s Disease International:

Writing Prompts.

Victoria Hare Programme Manager, Dementia Education and Training, HEKSS Dr Sophie Mackrell Network Manager, Time for Dementia Programme, Alzheimer’s Society.

1 What do you think working conditions were like at the turn of the century?

Dementia - challenges today and tomorrow

ECCF: Fulfilling potential

Transforming Care Partnership Listening to the views of Speak out Merton Friday 6th May 2016.

POWER CHALLENGES Several Ways To Solve 7 CHALLENGES.

A carers toolkit Workshops What more needs to be done to improve:

What can we learn from careful reading of an image?

Designing Everyone In Challenge

Bursary Announcement:

Triangle of Care Best Practice Conference May 2013

Making it Real for older people: Co-producing their active participation in decisions about how and where they live. Dame Philippa Russell, Vice-President,

Presentation transcript:

Slaying the Dementia Dragon: Alzheimer Organisations Responding to Stigma and Social Exclusion ADI Conference London 2012 Gráinne McGettrick

without a mind........

Why the Dementia Dragon? S

Productivity = Status

Slaying the Dementia Dragon – The Challenge New Social Group Life lesser lived Stigma by Proxy Not health care priority Public ignorance negativity

Slaying the Dragon: The Solution Active Citizenship Public perceptions healthcare system dementia workforce People with dementia and their carers Alzheimer Orgs

Alzheimer Organisations Innovators of Change

Valuing People with Dementia “ We do not bite, We may sometimes need an explanation; we may need to be told several times, we may get confused in ways you are not. But does that mean we should not be full partners with you in our crusade?....Let us in! Affirm our worth by partnering with us” Richard Taylor (ADI 2009) Only those living with dementia know what it is really like............cease to be a sideshow and instead are full participants in the work”. Knauss and Moyer (2006) So we need to open of door image of open door /closed door

Fellow Travellers?

Where to from here? Within the person within the org with society

Thank you Gráinne McGettrick gmcgettrick@alzheimer.ie www.alzheimer.ie