The Status of Part C Data Systems - 2013 Lisa Balivet, ITCA Data Committee Co-Chair Alaska Acting Part C Coordinator & Data Manager Pam Roush, ITCA President West Virginia Part C Coordinator DaSy Conference, September 15-17, 2013

IDEA Infant and Toddler Coordinators Association (ITCA) Not-for-profit corporation promotes mutual assistance, cooperation, exchange of information and ideas in administration of Part C and provides support to state and territory Part C coordinators

Purpose of the Survey Need for knowledge of state data systems due to: Lack of national data regarding state data systems States’ use of ARRA funding to: Expand existing data systems; and Develop new systems

Survey Construct The Survey Questions were developed to address the following components: Data Infrastructure Data Collection Data Security Data Validation Data Analyses Staffing

Data Infrastructure All components that relate to the design, hardware and/or software, costs and development of data system, data management responsibilities.

Infrastructure Systems 47 of 49 respondents 43 using a state-level centralized data system 34 use a web-based data system

Reporting Capacity

Budget 35 of 46 respondents budget for data system maintenance 21 of 45 respondents have line item for data system enhancements 14 of 19 health , 7 of 12 education , 14 of 18 other

Identifiers

Data Collection What data is collected as opposed to how it is collected

Workforce Data

Child Data

Focus on how data is protected and shared Data Security Focus on how data is protected and shared

Data Sharing Methodology

Data Linkage Across EC Programs 4 states reported they could ‘share’ data, one state could ‘link’

Transfer of Child Identifier 10 transfer, 6 new ID w/ tracking, 21 new ID w/o tracking – maybe substitute this page with the child identifier by LA from p.47

The methodology used to ensure valid and reliable data Data Validation The methodology used to ensure valid and reliable data

Data Validation Tools

Ways that states are using the data that is collected. Data Analyses Ways that states are using the data that is collected.

State Usage of Child Data

How states are staffing the various functions of their data system

Data System Staffing

For More Information Pam Roush, ITCA President Pam.S.Roush@wv.gov Lisa Balivet, Data Committee Co-chair Lisa.Balivet@alaska.gov