Health care quality from the persons with dementia’s perspective: Development and testing of a questionnaire Ann Karin Helgesen and Vigdis Abrahamsen Grøndahl RNT, MSc, PhD Associate Professors in Nursing Science Østfold University College Norway 1

Statement of the problem 47.5 million people have dementia worldwide 7.7 million new cases every year A growing patient group’s opportunity to express their views on the care they receive is limited

Statement of the problem Persons with dementia can provide meaningful answers The Quality from the Patient’s Perspective (QPP) questionnaire

The purpose To adapt the Quality from the Patient’s Perspective Questionnaire (QPP) for use by persons with dementia To describe perceptions of care quality among persons with dementia in special care units in nursing homes

Ethical considerations Norwegian Social Science Data Services

Methodology & Theoretical orientation A cross-sectional design Special care units (SCU) in three nursing homes 61 persons with dementia (54.5%) Response rate of 96.8% Interviews using an adapted version of QPP labeled Quality from the Patient’s Perspective (QPP-DC)

Exploratory factor analysis Cronbach’s alpha

Ages ranged from 60 to 100 years (mean age 85.3 years) Results Ages ranged from 60 to 100 years (mean age 85.3 years) Two-thirds were women 54% had upper secondary school or higher education 34% of the respondents were assessed using the CDR The score of the MMSE ranged from 1 to 26 (mean value 12.98)

Results The QPP questionnaire specifically for dementia care (QPP-DC) consists of 23 items representing seven factors with an eigenvalue ≥ 1.0 The reliability coefficients were acceptable for most factors

Conclusions & Significance QPP-DC provides a meaningful tool for care quality improvements in SCUs by detecting areas of importance concerning healthcare for persons with dementia. Efforts must be made to provide a more person-centered approach in order to help and support the persons with dementia when feeling uneasy and lonely.

Thank You for Your attention E-mail: ann.k.helgesen@hiof.no Phone: +47 69 608838 / +47 41644245 E-mail: vigdis.a.grondahl@hiof.no Phone: +47 69 608698 / +4793052634 Østfold University College Faculty of Health- and Social studies N-1757 Halden Norway