Founded in 2016, The Wiedemann-Steiner Syndrome (WSS) Foundation serves as a cornerstone of knowledge for individuals affected by the syndrome, their families, physicians and researchers. Together we support and advocate for ongoing research and help those diagnosed reach their greatest potential.

The Foundation’s initial monetary goal is to raise $250,000 by the end of 2019. Since its inception, the Foundation’s supporters have contributed over $60,000 to the Foundation

That is nearly 25% of our initial monetary goal

5% of the WSS Foundation’s annual net funds will be donated to non-profits that serve those undiagnosed and to non-profits that serve those diagnosed with rare diseases.

2017’s recipients will be the National Organization for Rare Diseases and the Kabuki Syndrome Foundation.

What are the Foundation’s Next Steps? Develop a Scientific Advisory Board Grant two, $7,500 micro-grants focusing on feeding and digestion and cognitive development Grant one, $200,000 grant focusing on WSS as a whole Establish Internationally WSS Family Conference 2019 while encouraging and supporting regional meet-ups in between