Transition to Adult Care: Resources for Pediatricians Janet Hess, DrPH, MPH September 18, 2014 Transition to Adult Care: Resources for Pediatricians 1

Health Care Transition Preparation Increased responsibility for health care self-management; understanding and planning for changes in health needs, insurance, and providers in adulthood; should occur across ages 12-21+ The purposeful, planned movement of adolescents and young adults, with and without SHCN, from child-centered to adult-oriented health care systems. Health Care Transition (HCT) Transfer of Care Discrete event, physical transfer from a pediatric to an adult provider; should occur between ages 18-21+ Preparation is a process that should occur over time, starting at age 12-14. It involves increasing the patients responsibility for managing their own health (like take medications independently, being able to communicate with providers, making their own doctor’s appts, etc.). It’s also understanding and planning for changes in insurance coverage and health care needs in adulthood. Transfer is the discrete event, or hand-off from a pediatric provider to an adult provider, which ideally happens between ages 18-21. Transition is complete once the patient is established in an adult medical home Successful Transition Patients are engaged in and receive on-going patient-centered adult care.

The AAP, AAFP, and ACP recommend transition planning as a standard of care for all adolescents Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128:182-200, http://pediatrics.aappublications.org/content/128/1/182.full.html. 3

Information & Referral Population Model Chronic Condition Care Coordination Transition Plan Preparation Assessment Information & Referral YSHCN Enhanced Planning All Youth Pediatric Care System Adult Care System

Do you have a practice policy for transitioning patients to an adult model of care? What steps do you take to prepare adolescents and their families for the change?

Florida’s clearinghouse for health care transition information at www.FloridaHATS.org

Transition Toolkit

Transition Toolkit Visit www.jaxhats.ufl.edu or www.FloridaHATS.org Account Set Up Email address Which position best describes you? Medical Provider Youth and/or Caregiver Case Manager Teacher

HillsboroughHATS Post Card

Educational Materials

Self-Advocacy Guides

Self-Management Videos 9 short videos with step-by-step instructions

Transition 2 Go

Health Care Professionals Training for Health Care Professionals Web-based, video format Recently updated with current evidence-based materials 10 modules 15-20 minutes each; 3 hours total Posted on FLHATS web site Free CME/CE (4 contact hrs) through Florida Area Health Education Center, www.aheceducation.com

Contact Janet Hess, DrPH, MPH, CHES FloridaHATS Project Director University of South Florida jhess@health.usf.edu (813) 259-8604