One Vision, One Voice: Palliative Care Community of Practice January 16, 2004

Institute for Johns Hopkins Nursing - Dr. Karen Spencer, EdD The Team Institute for Johns Hopkins Nursing Dr. Cynda Rushton, DNSc,RN, primary investigator - Dr. Karen Spencer, EdD - Kathy Sabatier - Mary Hapeman - Lois Gould - Bruce Dennett Dell Professional Services

Palliative Care “A model for the relief of suffering and the improvement of quality of life across the spectrum of illness” Not restricted to people who are close to death Applies to infants, children and adults

Palliative Care: Real Stories about Real People

Where we want to be: Integration The integration of palliative and curative care challenges us to move beyond the “serial processing” of curative care then palliative care To new ethical frameworks and norms of practice that provide for the “parallel processing” of curative and palliative care.

The Nursing Leadership Academy for End-Of-Life Care Objectives Educate nurse leaders in strategies of planning and managing organizational change and advocacy initiatives related to palliative & end-of-life care Create a system of support, networking, and mentoring integrate palliative care into all specialties of nursing practice Funded by the Open Society Institute’s Project on Death in America Nurses are the largest group of health care professionals More than 2.4 million registered nurses in the U.S. Nurses provide holistic care to patients and families across the lifespan Unique knowledge and skill Spend greatest amount of time with patients and families Trusted by consumers

The Nursing Leadership Academy for End-Of-Life Care Impact 44 national nursing specialty organizations More than 600,000 nurses represented by Academy participants

Connecting Academy Members Technology was the enabler – our team could focus on people and processes because so much of what communities need – a space for conversations, a place to share documents, a search engine to find resources and people – was available “out of the box” with Windows SharePoint Services.

Technology Enables Community Find and make connections with one another Share best practices Solve problems Create enhanced meaning from their work Provide support for the care giver Find key resources

Technology Platform Windows Server 2003 Windows SharePoint Services SQL Server 2000 Standard

Partnering for Success

Academy site: http://www.pcnleadership.net (Public website) Academy site: http://www.pcnleadership.net

Contact Information Susan Hanley Practice Executive Dell Professional Services Susan_Hanley@dell.com Dr. Karen Spencer Assistant Professor Johns Hopkins School of Nursing kspencer@jhmi.edu Dr. Cynda Rushton crushton@son.jhmi.edu