Datamanagement November 7th, Brussels

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Presentation transcript:

Datamanagement November 7th, 2017 - Brussels 11/28/2018 Introduction of Next-Generation-Sequencing technology in (hemato-) oncology in the Belgian healthcare system Datamanagement November 7th, 2017 - Brussels

From data input … Oncological care programs Pathological REGISTRATION Oncological care programs Pathological anatomy Health insurance companies Belgian Cancer Registry population based Project-specific NSSN ADDITIONAL KSZ/BCSS vital status IMA-AIM claims data on medical acts & medications Regions Death certificates

Datasources 104 Hospitals 100,000 records/year Registration form 84 Laboratories for pathological anatomy 650,000 records/year DATA TRANSFER 750,000 records/year MOC-COM form Health Insurance Companies Historical database 1,500,000 (pre) invasive tumours

Laboratories for pathological anatomy Good collaboration with pathologists Structured dataset in accordance to international guidelines and protocols Datacollection in batch through extracts As from 1/1/2018 through Healthdata.be platform Double delivery through batch remains compulsory until exhaustivity and quality of data can be guaranteed Business logic at the BCR

Datamanagement NGS and molecular tests BCR essential partner in the introduction of NGS technology in (hemato-) oncology in the Belgian healthcare system

… To data output Research by BCR itself Cancer Burden - Epidemiology Methodology Quality of Care, volume-outcome Capture molecular data … Research by BCR itself Transfer of data to external researcher Cooperation with external partners WIV CaCe: Re-integration after cancer WIV: Nucabel 1, Nucabel 2 IMA … KCE: GCP, HTA Evaluation screening programmes RIZIV RIZIV/CaCe: NGS IMA WIV-CaCe … www.kankerregister.org  www.registreducancer.org 6