Director, Advocacy & Public Policy Epilepsy Foundation New England Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Bill Murphy Director, Advocacy & Public Policy Epilepsy Foundation New England

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016

Close to 3 million Americans currently live with epilepsy. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Close to 3 million Americans currently live with epilepsy. 1 in 26 Americans will develop epilepsy at some point in their lifetime. More than 67,000 people in Massachusetts have epilepsy (seizure disorders).

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 40 Senators More than 1,600 people living with epilepsy in your district. 160 House Members More than 400 people living with epilepsy in your district.

Vagus Nerve Stimulation (VNS) Responsive Neurostimulation (RNS) Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Medication Cannabis (CBD oil) Surgery Vagus Nerve Stimulation (VNS) Responsive Neurostimulation (RNS) Dietary Therapies

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Approximately 25 to 30 percent of the epilepsy population lives with seizures that cannot be controlled by existing drugs or surgery

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Timely access to appropriate care and effective coverage for epilepsy medications is a critical concern for people living with epilepsy.

Removing barriers Access to specialists Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Removing barriers Access to specialists Prior Authorization Step Therapy Medication substitutions Formulary changes (affordability, high cost sharing, tiering) Onerous drug monitoring requirements Access to emergency medications

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 Amendment #13 to H.4200 Massachusetts Patient Access and Safety Commission

SUPPORT OF HB 791 Representative Jennifer E. Benson Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 SUPPORT OF HB 791  Representative Jennifer E. Benson An Act relative to patient medication adherence Exemption process for step therapy !! Joint Committee on Health Care Financing

Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May 5. 2016 THANK YOU !